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steve went to christie yesterday,he needs to go in tues to have a drain put in tummy as it is swollen, he has refused anymore chemo as it did not work for him so he ask doc how long left? we told 6mths but then doc said because of problems steve having and the cancer was found too late we looking at 3/4mths he was devastated, he cried, and just wanted to get home and have a brandy. wish we did , so i hope we can have some quality time before he get sick, things have been going downhill last week or...
I've had a lovely day today, (after the hiccups with the trains) at a hotel in London at the TargetOvarian Well Being Day. It is wonderful that some many people are now trying to do things to bring this disease to peoples knowledge. A meeting of people with the same illness, and hints and tips of making the most of yourself. Just what we need so you don't feel so isolated. My friend that came with me was very impressed, being a survivor of 23 years, and knowing how little cancer was talked...
I hope that I am doing this right, I don't know the first thing about blogs and this is my very first time. I was originally diagnosed with NHL in 2007 and underwent chop chemotherapy followed by a stem cell transplant where my own stem cells were used. By February 2008 my treatment had finished and I was recovering from the effects of it all. Last month I caught a cold and I noticed that my neck was a bit swollen at the front where the thyroid gland is. I went to my GP who immediately did a...
hi all ,just had a little set back this week with the radiotherapy.it has stopped me being able to pass wee ,and my little shrimp was getting terrible burning pain,couldnt stand it any more so had to dial for help,taken into hospital,and a good job to as got so much urine in the bladder,it could have caused renal problems ,so all you men out there ,who are all having radiotherapy for prostate cancer,you know your own body, and pain threshold,take my advice dial the proffesionals ,and get sorted,i...
Well what a bloody morning!!!!!
Woke up feeling so ill, shaking and feeling dizzy and still in so much pain with my mouth :-( took some painkilers then thought i best check my temperature.... it was 38.2 didnt bother ringing the hospital though as i had the mac nurse coming out to see me. She knew i wasnt well soon as she saw me even though this was the first time we had met, she checked my bp which was through the roof and so was my pulse she did my temp agin which was still high.
Then came the...
My husband finished his 2 year maintenance rituxamab therapy on 28 October and is due for his scans on 14 January and then the dreaded review and lets see what this cancer is doing meeting with his oncologist. I have stopped worrying in the interim because it is exhausting and not worth wasting the precious time. I shall now take my lead from my husband and not worry until we are given something to worry about then he will worry and I will become superwoman and take control. Will keep you posted...
Hi everyone,
The roundabout starts again..... much as the doc didn't want to believe me (no CA 125 results when I saw him him in the morning) IT is back again, with a count of 785! I knew it was, but didn't really want to believe it. The doc told me to phone the cancer nurse to pick up the results, but I saw her on the way out, so she said she would phone me when she had them. He booked me for a 6 monthly scan and another appointment in 3 months. By the time the nurse phoned she had told...
Hi all,
Went to Newcastle yesterday to meet an oncologist. Didn't learn much that was new, but I now have a date for RAI - 1 Feb '11. It still seems like a long way off, but at least the whole family can relax and enjoy Christmas without special diets and exclusion zones.
I've been given the meds for the Thyrogen injections (they're in the fridge) so I won't have to come of my Thyroid hormones - which is great, which also means my body will not have slowed down before D-day and the RAI...
Well im very tired and grumpy only had about 2 hours sleep because im in so much pain with my mouth!!!
I stupidly thought round 1 of chemo wouldnt have that many side effects on me.... How wrong was i!!! And to think that they will get worse :-(
Im off to the doctors this morning to see if they can give me a stronger mouthwash, if the effects are going to get worse then on the plus side i will be a size 10 by the time chemos up lol. What i would give to wake up and have a cuppa instead of a mouthfull...
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