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Being a part of the Mac Family i feel like i am perfectly normal and incredibly lucky. Our moods go up and down with the drugs as we are all going through the same thing and yet our experience is unique to us. why am i lucky i hear you ask, well i have had some great advice and realised that feeling down can be turned on it's head quicker than scoffing a box of chocs by going on line and getting tips, hints and best of all support!
So thank you Mac Family for making today a better day.
Day 1 of chemo for my mother: Finally, after an agonizing decision and lots of emotion, we are at the C&W getting the first treatment. Mother was brave on arrival but it took over 2 hours to get started due to the upfront paperwork that needs to be done but as soon as the proceed started, mummy was pleased with the perfection of the nurses who tap her body for fluid. She is mightily sqimmish and with rolling veins, she is a tough patient to work with but... they nailed it first time and couldn't...
Morning. I am lucky that I have friends to pick Deri up for school when I'm recovering from chemo. But to get up today was an effort! My head and legs feel as though they are made of lead! It was lovely to see people yesterday but I think 3 lots of visitors and going out for lunch just wasn't what I should do! So today I am going to sleep! xx
Well, started the day by lying on sofa in PJ's after Deri getting picked up for school, had a nap and then Jo came over and made me coffee, gave me a pecan danish and washed up :))
Then mum called and said did I fancy lunch out? Ooh yes! So P met us and we ate at the Bear. Yum. Then home for nap before kids arrived home, and A arriving in her new camper van from Hereford to have a catch up.
She brought a bottle of wine, and I drank half a glass - oh yes, I am living the high life I tell you...
My bags are packed and I'm ready for my holiday tomorrow. I am looking forward to it although it will be bitter sweet because John loved Devon too. I'm sure Pat and I will talk about him a lot while we're away and remember the happy times. Gemma is wondering what's going on and glued to my side most of the time in case I'm planning on leaving her - bless her little heart! All her toys, food. blankets and towels are packed too and I wouldn't go anywhere without her.
I'm glad...
Hello everyone it has been some time since i was last on the site i think it must be over two months or more. I came upon some very negative blogs and i was really frightened by them, particulary as back then my diagnosis was realatively new.
I decided that i could not visit the site anymore as it left me really anxious. I find this really quite sad as in the early days following my diagnosis i do not know what i would have done without it. I realise of course that we all need to off load especially...
After this mornings blogs were a bit negative I thought I would write something slightly more positive. Mo had a good nights sleep (weds) and woke up about 5.45am,early you say,well yes but Mo settled down quite early. Gave her 6mgs of steroids.keppra and the voltarol about 6pm. Mo sat in the front room until about 7.30-8am which is a long while for her. About 7am she fancied some scrambled egg for breakfast, she only had one piece of toast didn't each much of it though but ate most of the scrambled...
chemo cancelled because B12injection was given too late by imcompentance at hospital chemo nurse said that as he was only given injection yesterday if they gave him chemo they would have to book intensive care bed now have a distraught husband and family have replied to all of you who sent good wishes today in a post on previous blog bless you all xxxxxxxx
Feeling a bit down today Mo's not responding as well as I would like/hope to the increase in meds,shes still so tired & not engaging too well in conversation. Our neighbours came round today for a cup of tea,Mo managed to get up and sit in the front room while they were here. Sue & I tried to talk to Mo and hold a conversation with her but it was just yes/no replies she found it hard to construct a sentence herself. You could see she had some degree of understanding what we were saying but there...
Met our Macmillan nurse today,Katy Bontoft for the first time not what I expected,she wasn't wearing the green uniform.It made a pleasant change to see her in 'normal' everyday clothes its easier to relate to,seen enough uniforms in the last week or so!.A very nice lady and to be honest quite relieved to see her finally,seems an age since a Macmillan nurse was mentioned but it was only on Monday afternoon when the district nurse visited.Had a very long chat with her about how we arrived at this point...
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