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I knew when the Prof rang my husband something was wrong - he never ever rings patients preferring the face to face approach. Hubby's hand was shaking when he put the phone down.
The sarcoma which was removed around 5 weeks ago and came back from the original biopsy as being of the same group sarcoma, had been revisited as it had not responded to the chemotherapy as the other deeper in-site abdo tumours, (discovered last March) which are shrinking.
The news was not good. It has now been reclassified...
Well, finally had my LD flap MX last Tuesday (14th) which all went very well apart from I did not have the morphine drip so was in a lot of pain. They eventually got an anaesthetist to come up and see me who prescribed regular morphine by mouth for 48 hours in addition to tramadol and co-codamol.
Had my first drain out on the Wednesday which did not hurt at all (probably because of the morphine) but the other 2 drains taken out on Friday were so painful the room turned blue!
I cannot fault the...
On this weird and unpredictable journey, my husband has been thrown a lifeline.
I'm acutely aware that many of you out there are suffering the most unbearable pain, suffering and grief, so perhaps it is insensitive to write this, but it is a stage on our journey towards an end we cannot deny.
Apparently, my husband is responding to his fearsome chemotherapy, which many cannot tolerate. Since it was a case of "This is the treatment on offer and we'll have to see........." perhaps you'll understand...
This was just a normal working day and my mum had been called back to the Breast Clinic. I said that I would go with her, but there was nothing to worry about. We had the same thing three years previous and it had been just fat lumps. When we where called in the doctors said "I am sorry your have Breast Cancer". My Mum was so brave and just sat there and said ok what now?
I had been hit with a brick, but new that I had to be strong for my Mum. I asked all the questions about what type...
I guess we all react to BEP chemo differently, based on our biological make-up, age and general health. For me it was the stuff around the chemo that I could have andled better, as the chemo itself was ok.
If I had to give advice to anyone about to start this regime, then it would be as follows:
1. Digestive health
Trying to fnd polite words, but as chemo is the ingestion of toxic stuff to kill the cancer (and it harms your hair follicles and bone marrow resulting in a brief reduction in immune...
I finished my last dose of chemo a week and a half ago, had my CT scan last Monday and my results today.
The lymph node has shrunk from 2016cm^3 to just 64cm^3, that's an astonishing 97% shrinkage, and the doctor expects it to continue to shtink for 6~8 weeks after the last chemo dose, so fingers crossed it keeps going and gets down to a normal lymph node + scar tissue size, anything under 10cm^3 would be good. It'll never be down to the original size due to the presence of scar tissue. So I'm...
Anyone had any similar experiences / advice / help on questions I should be asking doctors on behalf of family? Father has Grade 4 kidney cancer (has tumours on his one remaining kidney, on the kidney bed site of kidney removed 15 years ago, tumours on lung & one on brain. Sutent is controlling kidney and lung tumours but not controlling brain tumour. Blood clots found on lungs so having injections to thin blood. Had palliative brain radiotherapy two weeks ago (12mins/5 days). Now in hospital...
Hello! Oh dear... I just had a look and I have not written a blog for ages and ages and aaaages...
Hurrah! say you lot, we got time to catch our breath and rest our eyes...
Anyway, this one won't be long... haha I hear you say... heard that one before!
Oh ok, better send Bernard St Bernard out with the brandy just in case...
I am currently sat on a hotel bed in Torquay with my son :) I came down to get him to take him home tomorrow so we can go away on Sunday. The room is HUGE! Free wifi...
