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I have been staying with my mum and dad but went home on friday as I hadnt seen my kids and husband. The marie curie nurse was staying so I thought it would be ok. But mum phoned me and said dad was very distressed so I came back and spent the night. He spoke to me and said he felt funny and he was going to die. It was a horrible night as I kept watching him. I spoke to the marie curie nurse and she said people sence thing even if its not that day they know the time is near. He is very adgitated...
steve has gone downhill over weekend. nurse bakc tomorrow to put up syringe driver. and catheter, it is so horri ble to watch you love on fading way. only having sips of water now. very restless, not sleeping much. i just hope he goes peacefully.
Hi everyone
Unfortunately I have another infection. went to gp on thursday after work and he has put me on co-amoxyclav and also metrosa gel for in the wound.
photos 1 is saturday and photo 2 is today
still feeling under the weather and there is pain, redness and heat coming off the wound.
hope everyone is ok....
peter
SATURDAY
SUNDAY
hiya all
not posted for a while... dont know why...think it was coz we were just dealin with it all ourselves and just sorta got on with it! well trev eventually finished his chemo cycles.....3 cycles....one week hooked up 24/7 for 5 days.....2 weeks off then start agen. did realy well....first cyle he breezed thru...tumour began to shrink immediately....second cycle...again really good but caught a sickness bug which floored him for a week..but agen bounced back....held onto his hair til the eve...
It's been a bit up and down in the past few days. I think I had been doing very well since coming home, but somewhere along the way I overdid things. On Friday I was looking pale, feeling cold, needing extra rests again and in more pain than for some time. I guess it wasn't a good idea to try and start reducing the pain killers I was taking but I had been feeling reasonably well up until that point. Especially after the stitches had been taken out from round the stoma as they were painful and pulling...
I started a blog online before I new of this site so I will post it here instead of re-writing it all again. I did it for family so they could see what is going on instead of having to repeat myself over and over and live every moment.
http://her2-negative.blogspot.com/
Ill write here from now on too and hopefully people will see we are all in the same boat
I got results of CT scan today, thankfully the scan is clear and my consultant is happy with my progress.
I told him that I am still going to the loo 3/4 times a day rather than the 1 time a day before the cancer. He said that it is normal because the colon is normally three and a half feet long and he took about a foot off so it's only 75% of what it used to be, so it has to go somewhere.
There was an issue with my bloods, my hemoglobin level is high - 17.2
I am going back for more blood tests...
We have had to cancel our holiday to New Zealand, my mother in law has been diagnoised with multiple brain tumours. (primary)
The diagnosis in not good, weeks or a few months to live
She has become extremely confused and does not really know where she is any more. We are having quite bizarre conversations which for now add a bit of humour to the situation.
Luckily for now she is not in any pain. She can not use her left arm or left so the symptons are like a stroke. She is in hospital at the moment...
A week or so after the stent was fitted things started to settle down for my husband. he found himself able to drink the super-calorific milkshakes with relative ease and managed a bowl of soup at the same time and speed as me. it felt like happier days were on their way.
Three days later it all went belly up. The acid from the stomach now has a clear passage way to erupt into and the fast tabs hubs was on were creating mucous and making him sick. The pain he has been in has been unbearable to see...
steve came home from hospital today after having stomach drained. he s very poorly doc said go home and enjoy what time you have left,.no more hospital appts. steve being cared for at home by the mac nusrde abd distric nurse, just hope he makes it through xmas. it's saw awful to watch him slowly deteoratting. what a waste of a life
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