Hi I’m new to this forum and have a recent diagnosis- 10 days ago. So far have been told it’s grade 2 and that I’ll need hysterectomy tubes and ovaries removed and maybe lymph nodes. Had a CT scan yesterday to see if it’s anywhere else and am feeling anxious about these results -hope I find out this week.
I am 61 years old and fortunate to have a brilliant network of friends (have only told a few ) and husband. I have 2 granddaughters who we have decided not to tell - they have enough to deal with with retuning to school next week etc. I see them lots so I am very lucky there.
Have joined this group really to share experiences with ladies in a similar position
So basically wondering how you all deal with these waiting between tests appt etc.
Hi l was just passing and thought it would be rude not to stop and say hello. I only remember a feeling of numbness when l recieved my diagnosis of Womb cancer mid march this year. (I was 60 at the time) The Macmillan nurses on the help line were wonderful and helped me through a very difficult time.
If l was to have to go through this again there is something l should have done differently. That is ....
Join this online community straight away, l didn't until after the op. Here you will get so much good advice and helpful tips on how to mske thst experience easier. I really wish l'd done that, l'm glad you have.
Hi Tania,
Welcome, I am glad that you have found us. I was diagnosed in mid March and had surgery to remove womb, tubes and both ovaries on March 30th.
it is all a bit of a waiting game, waiting for results, appointments, phone calls, operation, operation results, follow ups. I treat each one as another milestone.
Mostly, day to day I get on with life, but I do get the odd time when the cancer diagnosis ‘invades’ my thoughts. I have rung the Macmillan helpline, used a telephone counselling provided by work, rung the Samaritans in the wee small hours when I need a listening ear, taken myself out for a walk, rung a friend, posted here. I have learnt to live in the day and today was a good one. Post op I have taken advantage of Macmillan on-line exercise classes, taken up the invitation of the MacMillan nurse to call her as needed and recently finished the on-line HOPE course that was terrific.
Please do let us know how you get on.
Warmest best wishes
Honey 
Hello , Tania although I can't explain what has happened with your profile ,but I wonder if your username appears to show your real name it can be changed to protect you and keep you anonymous, by admin so I wonder if you have had any contact with them? You can of course ask by e mailing them community@macmillan.org.uk
Welcome to the community and our little corner of the community I am sorry to hear of your diagnosis and I am glad you found us. waiting on test, treatment is such an anxious time because our mind is in overdrive. LouEbelle is right about taking each day as it comes and being careful not to Google as some sites are not kept updated and will simply put more fear into you then you need at the moment. The one thing here each and everyone of us here have cancer or gone though it or supporting someone with it, so we know the emotions that run high due to a diagnosis. So this is me I was diagnosed three years ago just before my 38th birthday what a present i really didn't want, and was stage 1a grade 2 and had a total hysterectomy with ovaries tubes all removed, I hadn't had children but when my choice was taken I felt like I had let everyone down like my parents as they have no grandchildren but then I struggle with that but although think its beyond my control. I struggle with long term health issues which I did have some underlying. How do I cope with all the waiting for tests and results well I try to distract myself with art which helped me deal after my surgery and when all my emotions I held came swirling, I discovered I am pretty good too and continued it, I was surprised how arts and crafts is so therapeutic, I even started a thread here " the womb girls arts and crafts" with one important message you don't have to be good and if simply colouring a colouring book helps you then great. I am a support group too. But the most important message I kept hearing is take each day as it comes sounds simple I know, but it does help not to go into overdrive. Simply talking to people can help get things off your chest, it helps here that everyone understands what your going though and with lots of ladies having different stages and treatment there is a combined wealth of knowledge and lots of virtual hugs to go around. Hopefully you will get the scan results quickly these scans help them plan your treatment. Have you been given a date for your surgery yet?
Sending you a big hug
_GBear Xxxx
What is a Community Champion? Womb cancer forum
Call the helpline for free on 08088080000, 8am to 8pm everyday.
“let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies
Its good that you have a consultant doing everything they can to accommodate you. Can I just say no its not weird we each handle things differently and what bother us is different too, what would be nice is if everything is done to make you as comfortable as possible and dealing with mental health isn’t easy and there has been so much for you to try to deal with, you just have to do it step by step one at a time. Its not easy but lots of lovely ladies here hoping to make it that much more bearable. A fellow arts and crafter hey, i am glad it helps you, i was actually surprised it helps me so much I have a fair amount of underlying health issues that really do ramp up the anxiety which I deal day to day. It took me a long time to except that i cant fix everything but i try, my body just likes to frustrate me and I've learnt to except it but even I have had a wobble or two so if we can help you then we surely will try.
_GBear Xxxx
What is a Community Champion? Womb cancer forum
Call the helpline for free on 08088080000, 8am to 8pm everyday.
“let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies
