My first post

Hi Shorty76, I have just completed the course of treatment you are about to start on & it is a bit daunting as to not knowing what to expect. You have done great so far regarding the surgery but your body will still need another 6 weeks to fully recover, I coped better with the follow up treatments by dealing with them one at a time, it's a lot to take on board but you will find the staff terrific. Everything will be explained to several times & you can still ask for things to be gone over again until you are happy. Chemo was not too bad but it can be the side effects that are an issue but you will be given medication to take to counteract this which I found a relief. Tiredness was a problem for me but I would do what I could & then stop & rest & have a Nap if needed. Start writing things down now ready for the 5th Feb, no matter how silly you may think the question, it is all relevant to you, as I said you may want to go over everything or just deal with things one step at a time.

Sending lots of love

Just65 xx

Hello just65,

Thank you so much for your kind message of support. 

Yes it is abit daunting as to not knowing what to expect.

That is a good idea on dealing with the follow up treatments one at a time, it may make things more manageable in terms of me dealing with things.
I am still processing it all to be honest.

That is good to hear that things will be explained and explained again if necessary.

I have made a list of questions I have for my appointment tomorrow. And my son +daughter are coming with me too which is a support.

As far as I know, tomorrow will be to discuss the treatment plan. Not sure if they will do a CT scan tomorrow to see how things are looking after my hysterectomy in December? 
I am so nervous about what lies ahead but I am relieved that I can get support from others, (like yourself) on this MacMillan online community, who have also been through a similar situation.

How long did your treatments last?
I think overall mine will be 7-8 months.

Thank you again.

Shorty76 xx 

I hope all goes well for you at your appointment tomorrow.  I too had Lymphovascular Space Invasion (LVSI) but my cancer was Stage 1a Grade 2 so not quite the same and I didn't need chemo, just the radiotherapy and brachytherapy (internal).  You will be seen regularly throughout your treatments and can always ask any further questions you may not have covered tomorrow as you go along I am sure.  There are plenty of us on here who have gone through or are going through these treatments too and everyone is always very helpful and supportive.

Hugs, Lesley xx

Hi Shorty76

I expect tomorrow will be as it says to talk about your treatment plan & see how you are recovering after surgery, or at least that is what happened to me. It's great to hear your children are going with you as many ears make things easier to absorb, as we said & I think you will find most people will agree it's an awful lot to take in & some of the information may be further down the road treatment wise.

It's okay to be nervous, you have never done this before & nor had I, what I do know is once you have that plan in place & start your Chemo you will start feeling better in yourself, but it is baby steps, which is why I dealt with each treatment one at a time. At least that way I could fully concentrate on what was happening at that time instead of worrying what was going to happen weeks & weeks further down the road. I just finished my last treatment on January 23rd this year, so with breaks in between treatments  it's been about 9 months in total, but yours maybe a bit different according to your plan. Anything you are not sure of just ask them to repeat or to write down for you which they should be quite happy to do.

Good luck for tomorrow 

Sending love & Hugs

"WE ARE STRONGER THAN WE KNOW"

Hi Shorty76,

Just wondering how things went yesterday ?

Hello Poppysmum27 and Just65,

Thank you both for your messages.

My appointment went ok thanks-I think I have abit more understanding of my diagnosis now.

It seems that one part of where the cancer was was Stage 1a Endometrial cancer (which was the diagnosis from my hysterscopy in December).
And the histology report (based on the findings after my hysterectomy)- there was another part of the womb which was Stage 3b, grade 3 Endometrial Cancer. 

As you was saying Poppysmum27, I am reassured in knowing that I will be seen regularly throughout my treatments and can always ask any other questions. Alongside coming on here for support.

How long was your treatment plan for?
I had never heard of the internal radiation brachytherapy before until a couple of weeks ago.

I am relieved to know that I can come on here for support.

Yes thats right Just65, yesterday was to discuss my treatment plan. They explained things and answered the questions I had written down.
I was glad that my children were with me- it did make things easier to absorb.
And I think baby steps are the way forward.
I think I have been, and still am to some extent, very anxious about the overall treatment plan- that it was becoming overwhelming.
I did at one point consider not going ahead with the treatment because I am so nervous about the side effects. But I know that its important that I try do this.

I had blood tests done yesterday and they will be doing a CT scan within the next week to see how things are looking after the operation.
And they are looking to start chemotherapy within the next x2 weeks.

Thank you both for your messages.

Hii 

Just got hear about you and have to tell,it really broke my heart 

But anyway a very warm welcome from me 

And I'm happy that you got to disscuss about your treatment 

Hope that You have a great chemotherapy full of sucssess 

And hope you recive some good news in near future 

Wish you the best...

It's a good start Shorty76

Things will start making more sense as you go along, it's early days yet so one treatment at a time. Sounds like you are in good hands & having these treatments is the only way forward but still a bit nerve wracking at the same time, but I am sure you will adjust accordingly & any side effects you will cope with, I had some & the meds they give you really help. Stay positive, you can do this, we are with you every step of the way & we can always chat if anything is playing on your mind.

Say in touch

Love & Hugs xx

So sorry to hear you are going through this second course of treatment. Wishing you the strength and resolve to get through it x

Hello,

Louisa2000- Thank you for your kind words of support. It is much appreciated.

Just65 and Galanthophile- Thank you also for your kind message of support.

Thinking that things were scheduled in terms of preparation for my chemotherapy, a phone call today has completely thrown me off track.
I am due to have a CT scan this Wednesday (this will be my first scan since my hysterectomy).
I have also been given an appointment for next Wednesday to have tests done on my kidneys.
I can't quite recall why they do a test on my kidneys but I know its something that they have to do before they start chemotherapy.
So with this in my mind, I thought I would have time to sort other things out before I start my treatment (i.e- dentist/GP).
But today I got a phone call saying that I have an appointment this Wednesday with Oncology to discuss my treatment plan. I thought that was what my appointment last week was about?!
And I was advised that they are also looking to start chemotherapy next Monday, which doesn't make sense as they still need to do my kidney test (which they have scheduled for next Wednesday).
I am so confused now....
I told them that I couldn't attend the Oncology appointment this Wednesday as I already have a GP appointment that day..

I am not sure if its cross wires but its really added to my anxiety. Over the weekend I was even considering not having the chemotherapy....I know that they need to do the chemotherapy enable to ensure the cancer doesn't come back and to destroy any other cancerous cells that scans may not pick up on.
But I am just so worried that my body won't be able to handle any potential side effects. I am scared to be honest.

I am hoping I can get some clarification on my appointments.

Thank you for taking time to read my posts and offer advice.

In addition to still processing things, it just feels like things are moving too quickly now.