Womb cancer

FormerMember
FormerMember
  • 6 replies
  • 60 subscribers
  • 3365 views

Hello 

today I had my world tipped upside down and was told today at 28 I have womb cancer. I now have to have an MRI and CT scans to check to see if it has spread, I have been told to think about my treatment choice I have a good support network with my friends and girlfriend but they are finding it hard as they don’t no what to tell me regarding my choice or the knowledge of cancer my choice is between having the coil fitted or have a hysterectomy I’m just looking for some advice  

  • Hello A very warm welcome to you though I’m very sad for the reasons you are here. I’m guessing from what you’re saying about coil vs hysterectomy that you are young and wanting to preserve your fertility so I’m tagging in this - she has lots of knowledge and experience that might help you.  I think had a coil at one point. It won’t be an easy decision for you - I’d just say take time to get all the info you need, speak to doctors and don’t be afraid to ask questions. You can also ring the helpline (number on the home page) and ask to speak to one of the nurses - she can’t diagnose but she can talk to you in general terms. Gentle hugs coming your way. Whatever decision you make I hope you’ll be able to find peace of mind and heart x

  • FormerMember
    FormerMember in reply to Fairycake

    Thank you for you reply yeah I’m 28 so they have given me choices, witch in my opinion is making this harder because I don’t know what to do for the best because if I have the coil and then it doesn’t work or come back I’m gonna feel like I made the wrong choice but if u have the hysterectomy it’s the end of my fertility thank you so much for reply xx 

  • I was 32 when I was diagnosed and only found out as was trying for a baby unsuccessfully. I didn’t have the coil but had oral provera instead. It’s worth a try and if it doesn’t work then you would have to have  a hysterectomy but you’ve tried the alternative first. X 

  • FormerMember
    FormerMember in reply to Littlemisssscared

    Hey @littlemissscared 

    I wasn’t even told about oral provers what is that sorry to pry but I’m unsure what that is 

  • FormerMember
    FormerMember in reply to Littlemisssscared

    That was meant to say what is oral provera 

    I have now googled that and it seems to be a treatment for hyper palisa cells but my lining was already thicker than normal and I already have cancer of the womb so I’m guessing that’s why I wasn’t offered that but I don’t really no I’m still finding it hard to take it all in and i seem to have spend the day either being angry and everything or crying  and finding it hard to focus at work so I think I’m still very shocked by it all that or I’m just a moody person today Joy

  • Hi Mel,

    So the idea with the coil or the oral provera (or other oral progesterone) is that it helps break down the womb lining and eventually stops you growing any womb lining at all, so usually that means no more periods when it's done it's job. They told me that the coil works best as it is at the source whereas the tablets need to make their way through your bloodstream and to your womb. will keep you right, but my understanding is that she has a procedure where they chop away the excess womb lining then insert a coil and she takes the pills too on top. I think her last procedure was clear, and they get repeated regularly to monitor what's happening in the womb. There was another woman in the group who had similar successful treatment over a few years and has went on to have a baby.

    i had a coil fitted whilst I waited on a diagnosis and they gave me oral progesterone after my hysteroscopy before they confirmed cancer. They didn't offer alternative treatment for me, so i had a hysterectomy.

    its a lot to take in, there is no right or wrong, just what you feel is right in your own circumstances. It helps to keep a note of ask questions at your appointments and writing the answers.

    please keep using the site, it helps to know you are not alone, 

    lots of love 

    xxx