Hi people,
Struggling here and need a little moral support from those who understand.
Diagnosed grade 1 stage 1a adenocarcinoma in May 17. Lap assisted hysterectomy .no radio or chemo as peritoneal washings, clear and no LVSI. No lymph node removal or biopsies done. As near "cured" as I could be . 18 months ago developed intermittent bouts of pain round tailbone and lower buttocks. In Dec 18 had full MRI scan of spine. All clear. So referred to pelvic physio . No improvement in the pain really over the last 12 months. Lost my consultant in April 19 to another hospital and got seen by a succession of registrars for next 2 check ups and I have been mentioning it at every check up . Sent by 1st registrar for a ultrasound scan, which the sonographer admitted was not much use for my symptoms (which did not inspire confidence). The next registrar admitted that the US was perhaps a waste of time . He said he'd talk to the MDT and see if more detailed scans would be ok. Never heard anything back. Chased it up via my CSN 6 weeks later . New consultant now appointed . She said that she would discuss it with him.
Well since then it's been a bit of a rollercoaster. Urgent abdominal and pelvic CT was requested. Findings were of no obvious large tumours , everything good apart from an area of "uncertainty" in small bowel. "Soft tissue nodule or possibly a bowel loop" ???. Need MRI scan to help clarify. 1 week after this appt (last week ) an abdo and pelvic MRI done.
Now in that hellish limbo. Going out of my mind now . The logic in me says this is unlikely to be recurrence due to my initial staging and grading but I can't shake the fear of this, or even that they have incidentally found something unrelated to my pain or original cancer.
Been trying to keep distracted but having a big wobble last few days. Waiting for "that* phone call.
My poor hubby taking the brunt of it as I'm snappy and withdrawn. This disease just keeps giving doesn't it. ?
