My endometrial cancer diagnosis

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Haven’t been on here for a while as it’s been tests and appointments over the last month or so. After going to my gp because I had unusual vaginal bleeding, I began a journey of transvaginal ultrasound, hysteroscopy, biopsy and feeling the most petrified I’ve ever felt in my life. When the waiting was finally over and the oncologist told me I had grade 1 endometrial cancer it was actually a relief just to know. I am now going to have a laparoscopic hysterectomy and possibly some radiotherapy. It is very early stages and my consultant is confident that this will be all I need. All I can say is I don’t think you can explain to other people that feeling of being freaked out and the stress of the unknown , unless you’ve been through it. I’m at the start of my treatment and I’m here for anyone who wants to chat as it helped me when I first even had to contemplate having cancer 

  • FormerMember
    FormerMember

    Hi I agree with you totally. Your emotions are everywhere. I was diagnosed with stage 2 endometrial cancer in August. Had to wait till 11th November for surgery. I had a laparoscopic total hysterectomy and was really worried and freaked out. Had a meltdown before going down to theatre. But honestly I'd got myself worked up for nothing. There was no pain whatsoever after the surgery. The only pain I had was because of wind. So take something like windeze with you to the hospital and plenty of pop. I was able to go home the following day. I hope this will make you feel a bit happier about your surgery. Hope it all goes well for you and you don't have to wait too long. I've got my appointment tomorrow to see if I need any further treatment. Good luck and don't forget to rest rest rest x

  • FormerMember
    FormerMember

    Hi there

    so sorry that you’ve had this news. 
    I find it so nice at how thoughtful and caring you are, when you are going through this. You’re such an inspiration. 

    I had my biopsy taken 2 and a half weeks ago and haven’t had my results yet. Everyone seems to think that I have nothing to worry about as they think I would have been contacted by now but I’m worried and don’t know if this is the case or not. It’s such a worrying time. 
    thank you for your lovely messageHeartHeartHeart️xxx

  • FormerMember
    FormerMember in reply to FormerMember

    I was contacted in just over 2 weeks with my biopsy results. It's OK for other people to say not to worry but it's not happening to them. Take care and please give an update when you have had your results xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    I fully understand how hard it is to wait for biopsy results, my consultant went on annual leave without giving me mine. I contacted the GP who was able to get the results direct from the lab. You might like to try that approach.

    I hope all works out well for you and you able to move on without so much worry. It's the not knowing that makes everything seem so dark.

    xxx

  • Hi thanks for your reply . That’s really made me feel less stressed about my op. I hope that you get told that you don’t need anymore treatment tomorrow . And yes Ill have to rest even though it’s going to be hard for me not to be doing things. Good luck with everything x

  • Hi I think when you go through this , it does make you try and help anyone else who is as well . I waited about a week for my biopsy results and my cancer is very early stages and highly treatable. A hysterectomy will probably be all that I need and a very low chance of radiotherapy. I drove myself crazy analysing and overthinking everything. The not knowing is awful so I get it completely. I remember looking around at everyone carrying on with their lives and feeling like screaming as I was sick with worry . I hope that you get your results soon and that it’s good news. Im here if you want to chat xx

  • FormerMember
    FormerMember in reply to Scotkb

    Hi there 

    thanks so much. 
    the waiting is so stressful. I know what you mean, I find so many things so silly to worry about now. 
    I phoned the hospital and they said that the lab is running really behind and that it could be another 7 weeks till my results. I can’t work out if that meens I have less to worry about or if that’s just how long it’s taking. I’m so crabbit at the moment too. I don’t mean it but just really not very patient. 
    I need to take a leaf out your book, you’re so strong HeartbeatTwo heartsRevolving heartsxxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi there 

    I’ll let yous know how I get on. 
    thanks for taking time to answer me. Everyone is so lovely here. Two heartsHeartbeatRevolving heartsXxxxxx

  • Hi yes please let me know how you get on . I had a phone call today from my Macmillan nurse at the hospital and I’m having my op at the beginning of January. She said go and enjoy Xmas as best you can. At least it means I can go back home to Scotland for Xmas . And I’m not any stronger than you are. We are both dealing with it and it’s only natural to be a bit crabbit. Can you go to your doctor and have a chat with him/her about the waiting time for your biopsy results ? It might put your mind at rest just having a chat with them. Xx