Uterine cancer

Hello, welcome to the group. So sorry about your diagnosis. I  was diagnosed back in July  and remember the shock it caused, the waiting for scan results is really hard, but hopefully when you get a plan of action you will be able to function and see the way forward. My MRI  seemed to say stage 1A  grade 1 but this was not finally confirmed until after my full hysterectomy  which I had at the beginning of  August by keyhole. This was the only treatment I needed. I  found joining  this group a great help, even though I  didn't actually join until recently I  did read all the posts. I hope you soon get your treatment plan.

Hi Caz58 I'm sorry that we have to welcome you to this forum, but it's a good and informative place. It is so frightening still when the word Cancer is used, they can give you an idea of the grade but it will be after your hysterectomy (  just presuming that's what you will have ?) that all will be confirmed.It is so hard to comprehend the fact that you do have this diagnosis, and it can take a time to come to terms with it. Just take each day as it comes, try( easier said than done) not to overthink things and get over each hurdle as you get to it. And if you have any questions make sure you ask away. 

Lots of lovely people here to offer support, and no question on here is a silly one ! Take care of yourself,  sending a gentle hug, and remember to breathe.

LC

XX

Thanks! Just so worried about my scan & what grade cancer I have. Horrible! I just feel so low at the moment & keep thinking something bad is growing inside me! Just want it all over with! 

Thanks so much for the support. I don’t think I’ve ever been so scared. I never thought I’d have cancer. My mum died of bowel cancer & everyone you talk to has been through it or has a family member who has. I know cancer can be cured so I have to remain positive! X

Sorry to hear you have had such a shock, Caz58.  However, try not to let fear overwhelm you because it's entirely possible that a hysterectomy will be all the treatment you need.  

My experience was very similar to that of Carolina61.  I was diagnosed with endometrial cancer in mid September.  From my first appointment with a gynaecologist I had a good idea that I had cancer because she said my symptoms were indicative of adenocarcinoma (and the initial biopsy and MRI scan showed she was absolutely right).  She stressed that this was a "good" type of cancer to have (hard to imagine such a thing, I know) as it is less aggressive than some others and womb cancer is most often confined to the uterus so can be removed totally by a hysterectomy.

I had my hysterectomy (keyhole surgery) six weeks ago tomorrow and it really wasn't nearly as bad as I'd feared (I only had to spend 1 night in hospital, was up and walking around a few hours after surgery and did not experience a lot of pain).  I've already been able to start swimming again.

Don't be alarmed if they are reluctant to commit to giving you a definitive staging of the cancer after your MRI scan - it's quite normal that the stagiig is not confirmed until after the womb has been removed and the histopathology study (biopsy of the tissue removed) has been completed.  Mine confirmed that the cancer was Grade 1, stage 1a (the tumour had penetrated less than 50% of the wall of the uterus and no other organs or lymph nodes were affected) so I will not need any other treatment, just as the gynaecologist originally predicted.

I know the uncertainty is very, very hard to live with but try to keep doing all the things you normally do and schedule as many things as possible that you enjoy as a distraction.  Hearing the word cancer strikes fear into all our hearts, but it does NOT have to mean a death sentence or even months of gruelling treatment.  

Very best wishes and I hope your results will be encouraging.

Thanks for your support! I feel so much more positive now! Just want the hysterectomy ASAP! Just want this evil thing growing inside me taken out. X

We are all here for you xxx What you said struck a chord with me. Once I found out about my cancer I just wanted it out asap!!! I had a hysterectomy in July and it was confirmed as 1A with no other treatment needed. You absolutely will come through this x I remember waling up after my operation feeling so relieved that it had gone. It wasn’t anywhere near as bad as I thought. I was walking a few hours after my op and home the next day ...I still get a bit tired etc but overall it’s like it never really happened. Best of luck with everything and please keep in touch x

I have 1b cancer so it’s hysterectomy & radiotherapy. I cried like a baby when the nurse rang me this morning to say ITS CURATIVE!!! I’m naturally happy it’s not grade 2,3 or 4 but just want rid of it!! Thanks for your support! X

A friend of mine had 1b and needed radio too. She is now cancer free and happy. You will get there...you’ll get those nasty little cells taken away and you’ll get your life back with the added knowledge that you’re one brave woman with a bucketful of courage! It’s hard to say there are any positives but in my experience it subtly changed me.  It made me realise how strong I can be and that there is courage in vulnerability. It made me realise how many people care about me and that my marriage is wonderful. It’s made me take a writing course and I have now had pieces accepted by magazines. You WILL come out of this horrible fog you’re in and the world might just seem a bit brighter than it was before. 

Waw I did not expect that reply & it brought me to tears as I haven’t slept properly for weeks & the mere fact that it is a 1b & curative made me cry so much with relief! Plus what you just said has added to my relief. I agree that you look at life so differently after diagnosis. Simple pleasures mean a lot! So happy just to walk the dogs or go shopping! Things everyone else takes for granted but believe me from now on they are so meaningful! X