Goodness, 3 weeks. I thought my 5 days was a long time compared to lots of people. I hope you will start to feel more like yourself now you are home. Take it very easy and don't rush anything, just take your time and get plenty of rest.
Hi, glad to hear that you are back home now. How are you feeling? Has your wound healed yet.? I'm still having all sorts of problems with mine. It was infected but although it was frustrating for you I'm glad they kept you in hospital for three weeks..They booted me out after two days but maybe that was because I and several others were cluttering up the recovery ward as they didn't have beds for us! My operation was on 3rd may and although the wound has healed in one place there is a very persistent resistant bit that has to be dressed at the doctors every other day as it is still discharging. If your appearing a tunnel wound now with a cavity which I believe are notoriously slow and hard to heal. It was suggested that I ask my gp for a c.t Scan to see how far it's tracking and the size of the cavity but that doesn't seem to have gone down too well. I think it's budget related again as gp and said hospital did operation so they need to arrange it but hospital has discharged me to gp so they need to order it they said and now they're looking at the oncology records and they've discovered I've had a scan at three Monthly check up..I have but it was a trans vaginal ultrasound to look for reoccurence. not a c.t. Scan! So they went nowhere near the wound! The other alternative I have is to let the wound close with the cavity underneath so it gets infected again then they will admit me to hospital, reopen it and clean it out! Sometimes I want to bang my head against a brick wall! If only we were born with little doors on us that we could open, see what's going on and give a squirt of WD40 or whatever is needed.as someone said to me though if we were my doors would never be closed because I'm fascinated by the human body and it's workings.. I'd do my own operations if I could! Anyway ,having had a good rant on your post I sincerely hope your wound has closed up and healed and you are recovering well. Don't overdo it..there's no need to feel guilty about having sofa days as your body needs them more than you realise..it takes a good year to heal up in there after a major operation. You take care. God bless and my apologies for taking over your post to vent my frustrations. Love lamb.xx
Hi Jacks, glad to see you home again. Although I was only in for 2 nights I was back being checked out before a week was up! I had strange bladder issues, but it was all fine! Go easy xxxxxxx
im glad to see that you are back home and on the road to recovery, I hope that hospital took great care of you and that you are being spoiled now you are home. Keep taking it easy,
Oh Lamb, I thought my six week infected wound was bad, no wonder you feel like banging your head off of a brick wall! I hope they can get you sorted soon, is your CNS able to help? Mine is good at pointing me in the right direction even if she can't help and making things happen. For me what eventually worked was a matched antibiotic (they swabbed the leaking fluid) and iodine strips under my dressings.
Hi arla and fairycake. Thank you for your good wishes. The nurse swabbed the wound again Wednesday as it was looking a bit angry and though the result is not yet back I've been told the wound has broken down this morning again so I've now got another course of antibiotics to take. Hopefully as I haven't had them for a couple of months it may do the trick..I can only pray that it does. I was thinking of phoning my cns to see whether they would authorise the c.t scan.or if they could suggest anything else..we are doing everything the district nurses told us to do. If you don't mind me asking fairycake, when you had your lymph node affected I think you said it wasn't picked up or shown clearly on the scan or am I wrong? On my MRI scan my lymph nodes were showing as clear so they didn't bother looking at them when they did the operation or removing any. When I saw the surgeon eight weeks later he mentioned that they were going to take this up with the mdt because my wound wasn't healed but I heard no more and when I had my three month check the consultant said she hadn't heard about it so she was going to email him but again I'm still in the dark. I will phone the cns next week to see what is going on but your comment made me think as to whether the MRI may have obscured anything,especially if it was tiny. I don't know, maybe I'm clutching at straws but my mother is going up the wall convinced they haven't got it all out and something is lurking despite my reassurance that it has all been removed. Still lets hope and pray the antibiotics work this time. Thanks girls for your thoughts and prayers. God bless. Love lamb.xx
Did you have radiotherapy in that area? I only ask because my husband had an operation AFTER radiotherapy in the same area, and he developed a 'fissure'. That is an opening from the inside to the outside. Every time he ate or drank it leaked out. It very, very slowly closed up, but took 18 months. They said it was due to poor healing caused by the radiotherapy!!!!
I was at my wits end with it, and thought he was like that for life!! xxxxx
No, unfortunately not nannyanny. I wanted it as a back up but because they can only give it once in that area I decided to save it in case things reoccured further down the line. One doctor told me, and it wasn't my own, it was because they had gone along the same incision line that they used for my caesarean section donkeys years ago and it would be slow to heal. I'm just getting impatient I think and want to get back to normal. I've started on antibiotics again so hopefully that should clear the brewing infection. I'm just feeling a bit guilty I think because everything is restricted. My husband is off this week but we are having to plan things around dressing appointments! I had hoped by this time I would have resumed work and managed to take a short break somewhere but I have to be careful even on a day trip. I was helping to care for my father who is bedridden with a form of dementia but I daren't do the lifting and rolling now in case I open the wound further. I will speak to my cns, whether I will get any answers I don't know but my next check up is late november. Whatever it is it will be and I'm sure a positive will come out of it..I always believe things happen for a reason to show you something..I'm wondering why this but it will become clear eventually. In the meantime I'm just grateful to have the company of everybody on this site who are so supportive. I'll keep you all updated and when this does eventually heal I'll be shouting from the rooftops. A big happy dance and fireworks! Thanks girls.xxx love lamb.xx
