Shell shocked

FormerMember
FormerMember
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Hi,

I'm new to the group and feeling shell shocked this morning.

Hi I'm 55 years, I have been diagnosed with endometrial cancer which has spread to my bowel, liver and lung.  I had no idea there was a problem until I started having bowel symptoms.  The irony is I had a hysterectomy 20 years ago for endometriosis.  The consultant is referring me to a gynae specialist who I will hopefully see next week but there are no guarantees.  Just wondering whether there is anyone else out there with similar experience, thoughts, advice or anything else.  Too scared to google because I know it won't make positive reading x  

  • Hello Welcome to our little corner of the Mac community though I’m very sorry for the reasons you find yourself here. No wonder you’re feeling shell shocked and frightened. Gentle hugs coming your way. 

    My diagnosis wasn’t the same so I can't offer any insights from experience. I would agree that googling isn’t a great idea. I had an aggressive serous type and made the mistake of googling statistics. It wasn’t pleasant reading and my clinical nurse specialist (CNS ) had to put me back together. 

    When you’ve had some time to gather your thoughts I think you’ll have a lot of questions you want to ask the gynae-oncologist. Write them down as you think of them and take the list plus pad and pen with you when you go. That way you won’t forget any of them and you can jot down the things your doctors say. Take someone with you if you can, perhaps a partner or trusted friend. It’s always helpful to have an extra pair of ears - my other half was good at thinking and voicing new questions on the hoof as the gynae-oncologist was speaking, whereas I needed thinking and processing time.  It’ll all seem like you’re going through a massive whirlwind just now. I found things settled down a little once I’d bet the team and knew what the plan of action was. 

    When you’re ready please feel free to ask us any questions. You’ll find this is a safe place to chat, ask questions, to vent and to wait. We’re good at group hugs and virtual hand holding. You don’t have to face this alone - we are here for you x