Grade 3 adenocarcinoma

Hi GrannyA,

Sorry you find yourself here. Because we have been through it all before (see my profile), at least we know roughly the pattern!  Having seen my daughter going through chemo I didn't want that, but fortunately I only needed a hysterectomy, and I consider myself lucky!!! Hopefully it will be the same for you.

You can content yourself (like I did) that I went as soon as I could, and could not have done anything more. They actually postponed my operation for 2 weeks as they had an emergency, and it made little difference to my outcome.

Wishing you all the best xxxxx 

Thank you NannyAnny,

I really appreciate you replying.

I got the distinct impression because it is grade 3, that I would certainly be having chemo and rads but the chemo may be before surgery depending on the MRI and CT scan. I just want the cancer cut out asap. I might be imagining it but I get the feeling they are not telling me everything and so have convinced myself that it has spread. I’m finding it difficult to rid my head of these thoughts. I’ve cried on and off all afternoon. 

I didn't meet the CNS when I was given the news as the circumstances were unusual but she phoned me yesterday. I had a list of questions but her answers were ‘stock’ replies and this frustrated me. 

I said that I want someone to phone me after the Multi disciplinary meeting as if they know I want to know but apparently they’ll send out an appointment as it has to be face to face. This appointment may not be for a week or so later. This makes me cross! Mind you I think I’m just generally angry at finding myself in this situation again. 

Apologies everyone you must think I’m a right dour person. This isn’t the usual me. 

GrannyA

Hi GrannyA,

I think you are entitled to feel dour!!

If its any consolation my consultant was very non-committal until the morning after the op, and she had the results of what they found afterwards. I really was not keen on her until then. She gave no words of hope, which I suppose, I understand! So different from my husband's consultant who was Italian and very upbeat right from the start. I suppose they are in a difficult position.  I nearly fell out of the bed when she actually high- fived me!! XXXX

Hi GrannyA,

Welcome to the group, although I'm sorry that you have had to join. I noticed you said you think the doctors know more than they are letting on, I always think that when I see them, if you have just had the pipelle biopsy to date they can't know much more than you, the hysteroscopy is what gives them a good look inside the womb. My surgeon was the same as Nannyanny's, he wouldn't confirm a thing until after my hysterectomy and histology but did give me his guess, which turned out to be spot on. 

i think you are well within your rights to ask for an appointment or phone call asap after the MDT meeting, it's bad enough waiting, never mind drawing things out longer, hopefully they are just giving you the worst case scenario wait times. 

Lots of love 

xxx

Hi GrannyA, I am sorry you find yourself here but glad you found the courage to make yourself known.  I agree with Arla that the doctor's can't know any more than they are saying.  Until they have the scan results they won't be able to telling the cancer has spread or not.  But waiting is the absolutely worst thing of all and it's understandable that you are imagining the worst case scenario.  We've all done that!  The thing with the medical profession is that these days people are all too ready to sue them if they give the wrong information.  More importantly it is a matter of good practice to gather all the information together and then discuss with colleagues so that they can give patients as accurate as possible information.  But I'm sure you know that already.  People have found various ways to deal with the anxiety of waiting but it always seems to involve keeping busy, doing things you enjoy and taking care of yourself.  I do hope you get answers to all your questions soon.  Xxx

Welcome , none us ever wanted to be here but we are all glad we did. I am sorry this is your second time with cancer and its no wonder you feel like you do, totally understandable and believe me we have all felt that way when we were lunged into this. 

I completely agree with what everyone has said already, Doctors are very careful not to fully commit to something without as much information as possible and after your scans and the MDT meeting they will have a much clearer idea and plan of action and should speak to you as soon as possible to discuss treatment options. I am saddened to hear that not only are you going though this again but also feel that your plans are put on hold. I had a two week holiday planned and was able to go before surgery and it made no difference, hopefully something can be arranged for your trip for your husband's 70th later on in May. Obviously it depends on your medical team if they feel it would be ok but if you can I hope your able to.

TY Arla. I did have internal and external ultrasound too. I think what is at the back of my mind is that the consultant said ‘it would be better if you cancelled your holidays as I need you to be available for further tests, treatment and surgery at the drop of a hat’. 

I have said that I really want someone to call me after the Multi disciplinary meeting but apparently they won’t do that as they’ve not met me so it has to be face to face. I don’t understand why they can’t give me an appointment that day or the next to let me know. I’m a complete wreck just wondering I deal much better with facts. 

I appreciate your reply

Thank you x

TY Hysteria53. 

I think I’d be coping better if I wasn’t laid up with my back. I’m seeing a physio tomorrow so hopefully she’ll help get me mobile. Not sleeping isn’t helping either! 

It is my 65th birthday on Saturday and the plans for that are up in smoke too. I’ve been on a breeders list for a new sheltie puppy, due to pick him up early June but we’ve had to cancel that too as it wouldn’t be fair on a puppy with me being incapacitated and not able to bend! 

Sorry there I go again with the moaning

i really appreciate you replying x

Thank you for the reply and hug Gbear. 

I agree with you. However it doesn’t matter how much I tell myself that worrying won’t change anything I am! 

I really am feeling sorry for myself. Tomorrow is another day though and maybe the physio will work a miracle on my back then I can occupy my mind. 

Hoping you’ll all see the normally upbeat me very soon. 

Thank you x

Hey , your not moaning at all, we all know all these emotions that come up when we have just been diagnosed. I know at my treatment hospital they have the MDT meeting on a Wednesday morning then they see the patients in the afternoon which is far better and I am surprised other hospitals don't adopt this way, its far better for the patients.