Lynch syndrome results

Hi Lara lou xx,

If I remember correctly it was around 6 months before I got my lynch syndrome results. I would give your genetic counsellor a ring and ask whether there in. I think you should know anytime now but at least giving them a ring you can find out if there is any delay etc. Waiting is always the worse especially these long genetic tests that take months. Fingers crossed you get them very soon.

Thanks gbear I won’t ring them, I’ll just wait but thanks maybe it will be any day xx

Hey Lara,

I think I was about six months for my results too, it seemed like forever, in the end I emailed the genetic counsellor and she told me they were clear, my letter took about another four weeks to come. I don't think it's unusual to wait a really long time for them.

xxx

Thank you arla Hun xx

Hi Lara lou,

I don't think it hurts to remind these people! Not the same, but last week I thought it was about time my yearly cholesterol test was done. I called at the doctors , only to be told by the receptionist that I should have had a reminder. I pointed out I never get a reminder! If I didn't chase it up nobody would worry!! And yes, it was time for it, but they had no spaces left to fit me in for a blood test!!!!! I was so cross, and went to the hospital instead where I walked in and after 4 others was in and out in 10 minutes!!!!! I'll add our doctor is pretty good in that you can still walk in THAT DAY and see him. Its the rest of the place that lets it down!!  xxxxx

Can I ask, does everyone get this test?

No. 

I wasn't offered it.

Lass

Xx

Hi squiggly, I was offered it as I was classed as a bit young to have womb cancer (35 when diagnosed) then they looked at family history and only agreed to screen my tumour for protein markers that indicate lynch.  That was negative so they didn't do anything else.

xxx

Hi

Lynch syndrome is a genetic fault that makes carriers more likely to develop womb and colon cancer at a young age - below 50. If your family has a pattern of these cancers it’s worth talking to your oncologist. 

You can read more here 

https://www.macmillan.org.uk/information-and-support/diagnosing/causes-and-risk-factors/genetic-testing-and-counselling/lynch-syndrome.html

Xx

Arla similar for me, classed as youngish (46) so they tested automatically for MMR - mismatched repair I think it is called. That was negative so ruled out Lynch. Xx