Hey, so I’m due to have surgery on the 21st but the area itself has been getting more sore and I just checked and it’s now started bleeding from a little split and is really sore. Im now just on the sofa resting it but wondered is this normal? Also...
Hi I've recently been diagnosed with stage 3b grade 3 vulva cancer. After a few surgeries the margins are clear so vulva all good ( sort of) but unfortunately macrometastasis in 2 lymph nodes which to be honest I wasn't expecting. All down to lichen sclerosis...
Hi all, had my WLE yesterday. So laying here feeling sorry for myself of course. Got my surgical stockings on, making me too hot to sleep. I forgot to ask how long I need to wear them for? My partner seems to think at least 7 days. Not been offered...
Ive had numerous WLE over 2yrs. My last biopsies was 10th july. Ive been waiting for my results, which i got back 5th August. Consultant says i need a MRI scan and my biopsies came back vin 3 still on my premium. To say im disappointed, no i would say...
Has anyone had electrochemotherapy for a tumor in the vulva after having chemo and radiation treatments in the past for vulvar cancer?
Ive been given imiquimod cream to use 3 times a week for 6 weeks. Im currently on my 4th week and im experiencing soarness, tingling, crawling, slight burning. Aching and flue like symptoms. Im hoping this is the imiquimod cream doing its job and its...
I had a radical vulvectomy in June 2023 and still have discomfort when sitting, walking and patting dry. Have any of you ladies got these problems and, if so, what do you do to make things easier. Do you shave or trim your hairs in the area? I cannot...
Hi, I had a diagnosis of Extra Mammary Paget's disease just over a week ago. Having the original lump removed made it really hard to sit, go up and down the stairs and get into the shower. I've got to have another suspect area removed with large margins...
Hi everyone I have recently been diagnosed with vin 3. I'm currently waiting to see another specialist my local hospital can't do the surgery due to the area that needs to be removed. I'm so scared for when they do operate incase they find it is...
I had a MRI scan, it came back clear, so its not progressed into my body, its still outside. Ive been referred to preston hospital, and have a consultation in 1 week on monday. Ive been told ive a small margin of AIN3 as well as VIN3, im a bit worried...
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007