Diagnosed with stage 3 vulva cancer and lichen sclerosus

Hi ClareB43

That's very kind of you to offer to help others here who have questions around their diagnosis. Maybe you could keep an eye open for 'newbies' and contact them as often new people to the group don't look through older posts but post and wait for people to contact them. 

If you have the time could you perhaps respond to the poster of this thread who joined the group within the last weeks and is looking for help with LS.

x

hi clare just wanted to ask you a question i had surgery for vin3 on my perineum last Wednesday i had a look for the first time today and theres no pus but theres quite a big area of rednes around the wound and it feels warm just wondered if you have experienced this after any of your surgeries. i think i will try to see the doctor tomorrow 

Hi Emeria,

I had surgery to the same area. I had 2 weeks of antibiotics due to an infection so I would see your GP.  I’ve also attached the website. It’s a bit easier to use as well.

hope this helps Xx

Hi Emeria, 

I had the same surgery you can private message me if you want to x

thanks for your reply im on antibiotics 8 a day for 2 weeks how long before you feel ok down there its been 11 days im still slightly tender and a bit itchy feels a bit lumpy i think i expected it all to feel ok by now probably wishfull thinking also constipated on and off 

Wishful thinking. It took me at least 6 weeks to fully heal. With two courses of antibiotics.   I started to put Epaderm cream on when it got itchy as it was also very dry. Did you join the Facebook group?x

hi jane no im not on face book im at the hospital today to check my biopsies there around my bottom so ive got to see the colorectal consultant 

I did used to for over a year but so busy with support groups and awareness pages I don’t get the time now plus I don’t really like the layout and my emails go into junk folder and I have problems with private message. 

That's fine ClareB43, it was just a suggestion as you said you wanted to help people.

To stop emails from Macmillan going into your email provider's junk folder you can either add the Macmillan email address to your contacts or, if the email is in your junk folder, select the option to tell your provider that it isn't junk.

What problems are you having with your private messages? I might be able to help 

x

Yes I do want to help so was going to bump the post up every now and then .

 I have put Macmillan in my contacts thank you for that. 
The messages don’t let me see what I have already written and disappears of screen and sends before I’m ready and lots of other problems but can’t remember what as haven’t used it for o we a year.  I use my iPhone . Also need to get used to this new layout.