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I am 41 and have thyroid cancer (tall cell papillary) that has spread to my bones, including my spine. I had a total thyroidectomy in January 2024, along with the removal of 105 lymph nodes. At this point, it was thought to be 'just' papillary thyroid...
Greetings all. I am due to receive RAI treatment end of this month. Please do share your experiences on the amount of doses and side effects you experienced. Any information on this plus hospital stay, home isolation experience will be appreciated....
Hi everyone, just want to start by saying I hope everyone is doing ok and keeping nice and positive through there journey!! My whole experience began just under 12 months ago, I had a chest infection that was long lasting. I was sent for an ultra sound...
Hi! I’m Mike, I’m in my mid-40’s and I was initially diagnosed with a thyroglossal duct cyst which was “suspicious for cancer” back in 2017/2018. To cut a long story short I was advised to not only have the potentially cancerous cyst removed but also...
Hi everyone, I recently had an appt with an endocrinologist and they have recommended increasing my dose of levothyroxine. It has only been about 2 weeks since I’ve increased this and I’m already feeling more anxious? Like a chest anxiety feeling...
Hi everyone I'm new to your discussion here and sorry to read all your stories. I have had a multi modular goitre for over 25 years and have lived alongside this until last year as it started to put pressure on my throat. The specialist decided to do...
Hi I just wondered how often others are getting thyroid function test done in first year after full thyroidectomy I had surgery last July had 2 stable test in October and end of November. I've been discharged from hospital but gp has not told me anything...
Hi has anyone had levothyroxine brand changed then a week after starting new one felt a bit drowsy been changed to vencamil. Felt a bit sleepy last couple of days just wondered if it could be the change in brand or just tiredness.
Hello all, I have been on a journey this past year with blood tests to determine that I do have they mutated gene Men2a and I have been through all the testing to find that my levels are good and there is nothing worrying on my scans. But I am still being...
Hi all, I had a total thyroidectomy for PTC 2 months ago and for the past week my voice has changed. I can’t shout, laugh, or even cough as I normally would. I did tell my consultant at my 6 week follow up appt that I had a slight sore throat on one...
