Greetings from a newbie!

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Hi!

I’m Mike, I’m in my mid-40’s and I was initially diagnosed with a thyroglossal duct cyst which was “suspicious for cancer” back in 2017/2018. To cut a long story short I was advised to not only have the potentially cancerous cyst removed but also to have my thyroid removed with the cyst having formed from thyroid tissue, therefore my thyroid was deemed potentially cancerous despite scans being clear.

Having undergone the removal of the cyst and thyroid both were biopsied post-surgery, and malignant tumours were discovered in both.

i underwent RAI after the surgery and am currently taking 275mcg levothyroxine daily as my last two blood tests showed levels outside of the preferred ranges.

I will try to be active on this forum when other commitments permit, so please don’t be offended if I take a while to respond.

  • Hello Nottstrekkie/Mike

    Welcome to the Thyroid forum. I hope that you will find it a supportive place to be and that it helps to share your journey with others. 

    I am sorry to hear that your cyst contained malignant tumours and that you had to have RAI after surgery and are now on daily medication. 

    Please feel free to dip in and out of the forum around your commitments. There is no pressure to post or respond to others and the forum is very much here for when you need it. 

    We do also have the Support Line available from 8am-8pm daily if at any point you feel like talking things through would help. 

    I wish you well with your current treatment but in the meantime if there is anything you need, then you know where we are. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm