Hi all, I have poorly differential papillary cancer with mets in both lungs, I have been told I need iodine treatment urgently but unable to be treated in my region due to lack of staff to monitor me whilst having treatment, I am in South West Region...
Hi I had my TT end of February and RAI in May this year. Healing well but I have now developed what I thought were “old” symptoms. My neck feels really tight and throat a bit soar. It comes and goes. I am now bending my head when I swallow as I’m scared...
hi all, have a few questions about rai, i am due to have my first injection tomorrow and then my tablet on thursday, i am having the 3.7 dose, i am told that is medium dose. i am a little confused as some people are offered the iodine thyrogen stimulated...
Hi everyone. I am six years post cancer papillary thyroid cancer diagnosis and am very pleased to be well. I have been told due to cancer spreading into lymph nodes I will be on a suppression dosage for 10 years. I am happy with this. I have recently...
Hi, I'm now 2 and a half weeks after my operation and been home for 2 weeks. I feel I'm making a good recovery although feeling tired quicker than I used to be, although I expected this. How quickly could I start gentle exercise such as jogging ? I'm...
Hi Everyone I’ve had my thyrogen jabs and all was good - no side effects at all. I’m going in tomorrow to start RAI. I’ve packed a massive suitcase with loads of books and I’m taking my laptop for Netflix! Any more top tips from any one? How many nights...
Hi everyone I’m having RAI soon and just been sent details of thyrogen injections with side effects! Can anyone who had had this advise me on how they were affected? Do I need to cancel plans on these days? Thanks
I just had my TT 3 days ago and found out I had 1 positive lymph node for metastatic carcinoma. I’m wondering how common this is? Im very concerned about the spread to the lymph node and what this means. Any input is greatly appreciated thanks
It’s been a while since I posted here but looking for advice May 20 I had a total thyroidectomy for papillary cancer followed by RAI in the September. I was risk stratified to low risk and put on annual follow up. I’m now over two years post treatment...
Hi All Has anybody else experienced, after having both thyroids removed, aches and pains in joints and muscles, if so does it eventually go away? I'm so tired all the time and I'm feeling down. I was on levothyroxine 125 and just over two weeks ago...
