Hi everyone. I am six years post cancer papillary thyroid cancer diagnosis and am very pleased to be well. I have been told due to cancer spreading into lymph nodes I will be on a suppression dosage for 10 years. I am happy with this. I have recently been trying to lose weight and have lost just over a stone and hope to lose another stone. Its taken me 5 months to lose a stone so it's been slow. I have started to notice some issues with anxiety and waking up a lot at night as well as some stomach upsets. I am wondering how much weight you need to lose to need an adjustment to thyroxine. I was lowered from 150 to 125 at the start of the year as was too suppressed and struggling with insomnia and panic attacks. Any advice would be very welcome
Sorry I don't have any advice as I am new to all this @berlinbaby, but I am curious as to the link between cancer in the lymph nodes and being put on a suppression dosage. I will be having lymph nodes removed later this month and have only been on 50 mg for approx 2 years and have not really had any problems so to speak. I have however read other people who have many side effects from higher dosages of levothyroxine and as I am having a full TT I am wondering how the higher dosage I will be prescribed will affect me. I am not looking forward to putting on weight and have managed a steady weight for several years after dieting and losing 3 stones around 7/8 years ago, but have crept half of it back on and hoping it doesn't get of hand once I have had my op. Taking 5 months to lose a stone is good as it is recommended that you aim for 1 lb per week and it is much easier to maintain rather than yo yo dieting.
Hi, I worried about how my TT would affect my weight. It's been a few years now and mostly I think my ability to gain and lose weight is the same as it was when I had a thyroid. I started with 125 after my surgery and my body struggled to be properly suppressed so I kept being given more and ended up at 200 but that wasn't fun as I was starving all the time and couldn't sleep. After a few months they lowered me to 150 and that was much better. This year I went down to 125 and that has been good for me. I have been losing weight this year, quite slowly but I have been enjoying healthy eating. I think with less of me I will need less thyroxine soon so will get a blood test. Your body will adjust and it will take a bit of time but if you eat sensibly you won't put weight on. I eat a mostly plant based diet with lots of complex carbs and can lose weight. Some people think keto is better after TT but I am proof that's not the case. It's all about calories. Don't worry, you will be fine.
My hubby also lost 4 stone, we dieted together which helped a lot. We reduced our carbohydrate intake a lot and ate a lot of white fish and plenty of veggies and altered our snacking habits. It worked the first time but is much harder now for some reason, probably because we had more to lose. I counted calories but he didn't, I found it easier to control how much I ate if I could see how many calories I had left for the day.
Hi BB,
I would suggest to get your blood tests done again. Those symptoms of panic and insomnia could be due to over-suppression. A quick test should make it clear whether you need to drop your dose a bit further.
Best wishes
Barbara
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