Hi all, I have poorly differential papillary cancer with mets in both lungs, I have been told I need iodine treatment urgently but unable to be treated in my region due to lack of staff to monitor me whilst having treatment, I am in South West Region and wondered if any hospital could treat me or whether there was a nationwide shortage of these nurses, please comment guys regards Tomo....
Hi Tomo
I don't know if there is a nationwide shortage of nurses trained to use iodine treatment but have you spoken to your hospital team about having the treatment at a different hospital either in or outside your area. I would have hoped that if your treatment is urgent they would be looking in to ways of getting this done.
If you have a keyworker assigned to you could you give them a call to ask the question if you haven't done previously? If you don't have a keyworker then your consultant's secretary should be able to help you.
Wishing you all the best
x
It's probably a shortage of nuclear medics. They are rather specialised and you can't just substitute them with a random nurse or doctor. Brexit probably led to some leaving, Covid rates probably mean that a proportion are out of action at any time.
Probably best to get your oncologist on the case to try to find somewhere else. Just keep in mind that you will be restricted on travel options going home afterwards so it's important to work out the practical aspects of getting home if you have to travel.
I don't recommend doing what my friend did, going home on the train from hospital, walking into a carriage and announcing "Stay away from me. I'm radioactive!"
Best wishes
Barbara
“Scars are tattoos with better stories.” – Anonymous
No need for any apologies Tomo. It takes a while to get used to how the online community works. If you get stuck at all just reply to me and I'll be pleased to try and help
Hi Latchbrook, thanks, my nuclear consultant is trying his hardest to get my iodine and has been phoning hospitals in sw region. But all are away on holidays, sick ect, I live in Plymouth and got a brother who will drive me anywhere to get treated, but I keep thinking my mets ect are growing and going to be difficult to treat especially in lungs. I don't feel sorry for myself I am very positive but just feel I have waited a long time to get anymore treatment, I put two fingers up to cancer and want enjoy my time with my wife and family and take what ever the future holds for me on the chin, I wish everyone with our cancers the very best for future setbacks good luck we are not on a journey we are living a nightmare haha lol lo e to all xxxx
Please check with your specialist. It's nice that your brother is willing to drive you but depending on the dose you receive, you may well be instructed not to be in a car with another person for more than 30-60 minutes because your radiation could harm his thyroid.
Please get advice.
Best wishes
Barbara
“Scars are tattoos with better stories.” – Anonymous
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