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Hello all,sarcoma is a really new word in my house,my mum fell 3 months ago and ultimately decided it was pulled muscles, she finally had an xray last week and found out she had 2 collapsed vertabrae (now we know why she's in so much pain),I went to the...
I have just read a couple of medical papers on uterine leiomyosarcoma. They say that even leiomyosarcoma staged at 1A only have a survival rate of 50% at 5 years. I'm in such a state now and just want to cry. I was feeling quite optimistic before I read...
I have been on this sarcoma journey now for 12 years. I was diagnosed in 2009 with Endometrial Stromal sarcoma in the muscle of the womb, after a routine hysterectomy. One ovary was removed, as it was damaged with scar tissue from multiple caesareans...
Hi i had a full hysterectomy, including ovaries etc, 9 weeks ago now, to remove 19cm leiomyosarcoma. The doctors said it had started to push its way out of my uterus, therefore most probably leaving nasty cells behind. It’s already spread to my right...
Did anyone watch the program tonight called the girl with the colourful leg? She was diagnosed with sarcoma in her lower leg when she was about 18. She had her leg amputated and since she got her prosthetic leg she regularly has it wrapped in different...
Hi all. Just joined this site, and there is obviously a lot to read through which I will work my way through in time. I found out yesterday that a small lump om the side of my neck contains cancerous cells and is diagnosed as a soft tissue sarcoma ...
Hi. I have my MDT meeting next Thursday, as had huge 19cm fibroid removed, which was cancerous and spread a bit to my right lung. no idea what treatment, if any, I will get, and just so scared of chemotherapy as that is an option. I’ve just been told...
Hi I’ve recently had a hysterectomy to remove 19cm fibroid, which turned out to be a sarcoma! I also have three small lung mets. Yesterday I had my appt at Southampton sarcoma unit, I am starting radiotherapy soon, for 6 weeks, on my pelvic area...
A low contrast MRI scan showed that I have a large (16 cm) tumour in my thigh, which is starting to affect the bone. I've only seen my specialist once and she ordered a bunch more tests, but she gently told me that there's a strong possibility that she...
Hello all I’d like to start by saying thank you to everyone who posts in this community. Just reading through experiences has been hugely comforting for me. My mum has been diagnosed with Stage 4 Sarcoma with the primary site being in her upper thigh...
