Leiomyosarcoma finally diagnosed!!!

Jane hi Sorry to hear of your diagnosis.I understand how you must feel.  Look at my profile to see what happened to me. Just know all cases are different. But if you have any questions, let me know. Take care xx

Hi Rambo 

thank you , your situation seemed quite similar, although my lung mets were picked up before I had the hysterectomy. I’m just waiting to see what the next stage is. Glad you are in the clear now. That’s amazing. 
Yes, we are all different, but I’m hoping i can be treated and in a similar situation as you, eventually. 
xx

Jane hi

Hi rambo

Thank you. Yes, I understand, it’s not exactly in the clear, as I understand it never really leaves your mind. Saying in the clear, seems too definite, but I understand what you mean. 

• I’m in Hampshire, Gosport, and was under QA in Portsmouth, but next Thursday, I am going to Southampton sarcoma unit, for my next steps and treatment. 
  Xx

Hi Jane,

My wife Janice has had two lots of chemotherapy for her lung mets and the second one managed to render her Leiomyosarcoma as stable - a situation we have been living with now for over six years. Glad you have been referred to the sarcoma unit at Southampton. Fairly familiar with the hospital as my mum was there for over six months after she fell and broke her hip. If you have the time it might be worth checking out the Maggies centre at the hospital while you are there.

<<hugs>>

Steve

Hi Southampton is a nice part of the country. My husband went to Southampton Uni and  if we came back to the UK we would have wanted to locate in Southampton. If OK with you let me know how it goes on Thursday. I feel very lucky I am here today and would like to share anything I can to help. I also like your photo enjoy a glass of wine. xxx

• Hi Steve. 
  that’s reassuring to hear, thank you. 
  Yes, I’ve heard good things about Southampton, I will check that out, thank you x 

Hi 

Yes, my husband used to live there too. 
I will do, thank you. 
I appreciate that. 
I do enjoy a glass of wine or a cocktail  

xxx

Hi Jane. I'm glad to have found you again! I'm sorry that you're still waiting to find out what treatment they will give you. I'm seeing the sarcoma team at the Christie on Tuesday, I've literally been counting down the days. On my referral letter it states that there is lymphovascular space invasion which is really worrying me. Please let me know how things progress and take care. Deb

Hi Deb

I had to delete my act and start again. I think we are friends on here?

yea, my appt is Thursday at Southampton. Dreading it, but also need to know what’s next. 
I’m glad you have your appt too, this week. How did you see your referral letter, Ive seen nothing?

I think I’d rather not see it. I don’t know what that means,  I hope it’s ok a d you find it all out on Tuesday. Let me know how it goes. Take care and try not to worry, easier said than done 

good luck tomorrow 
xxx