Anyone else staring down the barrel of a leg amputation?

Hi Starlady, my cancer is leiomyosarcoma which is usually found in the uterus. Mine was inside a fibroid and I had a hysterectomy in July. Leiomyosarcoma is resistant to chemo and radiotherapy so I'm on three monthly scans and reviews and if it comes back hopefully it will be found early enough to remove it. I'm sorry but I don't know much about bone sarcoma but hopefully someone who does will be along to give you advice. From what I've read chemo and radiotherapy does work against soft tissue and bone sarcoma. Good luck and try not to worry too much. Deb

Thanks. 

It's like some sort of ghastly lottery, isn't it? Waiting to see if I get "nasty op on my leg" or "dead by Christmas" or (far more likely) "fight like hell."

I really hope yours stays away.

Sheila

Hi Starlady, it’s rotten luck that you’ve found your way here. I have Undifferentiated  Pleomorphic Sarcoma in my thigh and have had a number of local recurrences, which have been removed by surgery. Other treatments that I have had include radiotherapy and, more recently, regional chemotherapy (isolated limb perfusion). The jury is still out on whether the regional chemo has had any beneficial effect but the tumour that was removed post treatment was still viable. So, there are other treatment options available to you, some of which may or may not work but they are worth investigating thoroughly before you go down the amputation route. Good luck and I hope you are getting good advice from a sarcoma specialist centre. All the best,