Help please?

Hi Sierra101,

Sorry to hear you are feeling so lost, I hope you're team provides more information soon

My lump was removed by a general surgeon initially before identification of Leiomyosarcoma, the 2nd operation to get good margins was done by a gynaecologist. From initial identification to my second surgery was nearly 10 weeks. (my story is in my profile if that helps)

Have you been provided with a specialist nurse/Macmillan contact to ask your questions. It is always good to write down questions/concerns before your next appointment so that you are prepared before the appointment.

Hugs

Chrissy 

No we have been provided with nothing - we found out today that no referral has even been made and will not be until more histology comes back to determine the cell type. They said at this point they will decide whether they want to refer it or not 

Hi.  Mine was removed by a gynaecologist and then I was referred to the Sarcoma team for my lungs. But the sarcoma team were in touch with the gynaecologist.