I have just read a couple of medical papers on uterine leiomyosarcoma. They say that even leiomyosarcoma staged at 1A only have a survival rate of 50% at 5 years. I'm in such a state now and just want to cry. I was feeling quite optimistic before I read...
I have been on this sarcoma journey now for 12 years. I was diagnosed in 2009 with Endometrial Stromal sarcoma in the muscle of the womb, after a routine hysterectomy. One ovary was removed, as it was damaged with scar tissue from multiple caesareans...
Did anyone watch the program tonight called the girl with the colourful leg? She was diagnosed with sarcoma in her lower leg when she was about 18. She had her leg amputated and since she got her prosthetic leg she regularly has it wrapped in different...
Hi. I have my MDT meeting next Thursday, as had huge 19cm fibroid removed, which was cancerous and spread a bit to my right lung. no idea what treatment, if any, I will get, and just so scared of chemotherapy as that is an option. I’ve just been told...
Hi I’ve recently had a hysterectomy to remove 19cm fibroid, which turned out to be a sarcoma! I also have three small lung mets. Yesterday I had my appt at Southampton sarcoma unit, I am starting radiotherapy soon, for 6 weeks, on my pelvic area...
Hi my doctor had to sign and fill in a form for me. I had a full hysterectomy 5 weeks ago, and have a secondary lung cancer, in my right lung. He put that my cancer was stage 4, high grade. im waiting for another CT scan on my lungs, as the last one...
Recently been diasgnosed with Angiosarcoma Been pencilled in for surgery on the 24th August, however awaiting pet scan results as nodule showing on my lung. Anyone been through anything similar petrified
Hi everyone, I was diagnosed with GIST in March after firstly being told it was ovarian, I was told I had a number of tumours and that they weren't operable as the operation would be too dangerous, I'm on Gleevec which thankfully hasn't had too many side...
