My son has finally been diagnosed with malignant peripheral nerve sheath tumour.. hes had surgery and now we await further info !
I went to the Christie on Tuesday for the results of my MRI which was done due to an anomaly on my CT scan. The wonderful news was that it was just thickened scar tissue as we'd hoped. I don't need to be seen for three months apart from having some bloods...
The heading says it all. I’m living in hell, waiting for CT scan results, to see if sarcoma has shown any recurrence yet or lung tumours have grown! Does it get any easier? Thank you Jane x
I am in severe pain with my tumour has anyone else experienced this It doesn't respond well to medication and U can barely sleep. My tumour is in my pelvis so I can't walk
Hi all, I’m Stacey, 33 and in may this year I found out I have secondary alveolar soft part sarcoma. At the moment I am having 3 monthly scans and at the monitoring stage as the disease is stable. Primary site was my right lower leg, was diagnosed at...
Hi At what point do you find a way to cope/live/smile again? All I think of all day and when I wake up, is cancer!!! I’m scared to feel happy or laugh, and have to keep reminding myself! Every ache, pain, twinge is a constant fear of recurrence...
I feel I've been given another chance. My tumour has reduction in size. 2cms in all 3 measurements. It's a kind of huge avocado shape. I am extremely hyper at the moment. No counselling, just a year of fear, but now, new hope, so please anyone out...
Hello, everybody soon I am going to have another x ray to check if my cancer metastasis to lungs. My second after surgery, which concept of only second x ray in my journey of remission is an abstract for me. First one was clear, but when second is near...
Hi i don’t even know where to begin! I have ignored my growing lump. It’s hard. It doesn’t really hurt but has recently started to feel different. It’s like a building pressure when you get your blood pressure taken. i just feel so sad . I feel...
Hi I was diagnosed with a leiomyosarcoma in my uterus, in July. I’m currently only on letrozole to possibly keep away hormone positive cells. It’s also in my right lung. I may end up having radiotherapy to target any leftover cells in my pelvis, then...
