Anybody still here?

It's definetly very quiet on the group. 

I think we’re the only ones left ... 

It would seem quite a few groups are much quieter since the introduction of the new web interface.

Steve

Hi Steve, you’re right. I’m not sure what the answer is other than lots of patience. I think the “old timers” like us can cope - but it must be very difficult for those who are newly diagnosed. I’m not sure if many of them will naturally gravitate to the site until it starts to behave a bit better. I’ve given up stressing about it! Hopefully things will get back to (near) normal quite soon. Stay safe. 

I should have added that it’s great to see you back on the site - you’ve helped a lot of people in the couple of years that I’ve been involved here. Thank you. 

Hi Shackleton, as part of our cancer journey I was lucky enough to be approached to join the Macmillan team as a community champion. A small team of volunteers works with Macmillan to try to support the fora. We get some training especially around the area of empathy and to be honest we all admit it has really helped us as much as anything else to try to make some good out of what could easily be a big negative. People can see a bit more about us on we are the community champions

It has led me to also sign up as a time to change champion and am now actively involved in health, safety and welfare in my workplace.

Hi 

Although I don't post often I am still here 

I'm 4 years on from my first sarcoma diagnosis and I had mets diagnosed this year. I'm still around plodding along! 

How is everyone else?

Hi SuperReedy, welcome back. That’s rotten news about the mets, how are you dealing with them? A few people now seem to be drifting back to the site following the “upgrade” and I’m sure there will be plenty of experience and advice to help you through this stage. All the best and stay in touch. 

Hello, I’m new to the site. I had Retro peritoneal Sarcoma Removed a month ago, along with the right side of bowel.  I’ve been struggling with diarrhoea ever since. But hopefully it will settle.  I’ve been told I may need further treatment, depends on further scans and tests. I’m new to this sarcoma site and learning all the time. 

Hi Lyn, I’m afraid the waiting around for scans, tests and their results really isn’t much fun. Something that might be helpful for you is to go to the Sarcoma UK website and see what support groups might be local to you. Not a lot of help during this pandemic but could be very helpful to you going forwards. Good luck!