Giant cell tumour

Hi , welcome to the online community, I’m sorry to hear of your diagnosis and that someone with the same experience hasn’t come forward to reply yet. I have a different cancer but I noticed you hadn’t had a reply and this was your first post and so wanted to pop in and say hello. You’ve identified that your cancer is rare, so I did a bit of a search in this group on giant cell and came up with very few previous posts. There was this one https://community.macmillan.org.uk/cancer_types/soft-tissue-sarcomas/f/soft-tissue-sarcomas-forum/133950/rare-sarcomai

I put the link in for you to read and I’m hoping if I tag that if they still use the community that they might hear that I’m talking about them and my fellow champ src60, and pop in to give you a reply. 

Best wishes 

Hi there thank you so much for replying to my post and taking time to write back.

i will check this link.

best wishes

Hi , my wife's cancer is Leiomyosarcoma so rather different to yours or though of course still rare and it took a while for me to find anyone with even a fairly similar diagnosis. Added to that the lack of great knowledge around this - we have lost count of the number of times a doctor has looked it up on wikipedia.

Sometimes another useful source of support can be the sarcoma uk website though it does sound you are on a sensible track at the moment.

<<hugs>>

Steve

Hi Steve 

Thanks for your reply. I’m sorry to hear of your wife’s cancer. It’s so hard at the moment but talking about it doesn’t help. 

Best wishes 

I just saw what I wrote talking does help. 

Best wishes