Hi I’m receiving chemotherapy for Retroperitoneal sarcoma and wondered if there was anyone else who has experienced this. It’s stable at the moment but more chemotherapy is to follow, when this starts depends on scan results.
Hi It’s the dreaded scan time again. CT scan this Friday, to see if the radiotherapy has been effective on the tumour recurrence! How on earth are we supposed to relax, at times like this? I’m running about like a headless chicken….. and hiding away...
Hi everyone, I was wondering if anyone did chemo after surgery for retroperitoneal sarcoma. My sister had a 9cm mass removed in June and on July 5th was told it was aggressive so therefore they would throw everything at it. Since then they have changed...
So, having had very large Well differentiated retroperitoneal liposarcoma removed 2 and a half years ago, it appears I may now have a recurrence in the same area. Waiting to see surgeon. I am stunned to say the least. Obviously removal is going to be...
Hi all had quite a day of it yesterday. I have soft tissue endometrial sarcoma with abdominal and lung secondaries. I had a lung biopsy on the 18th Jan and got the results yesterday. The lung tumours are breast cancer secondaries. I had breast cancer...
Hello, this is my first time on here. My mum has been in hospital for the last 11 days, finally we got a diagnosis of sarcoma on Thursday, it has been discussed by the MDT team but sent to Birmingham for discussion now. My understanding is that they...
Hi all Looking for a bit of guidance. I'm currently going through melanoma testing. I've recently found a small lump in my trapezius muscle. It is around the size of a bit of sweetcorn. It feels hard but I've noticed that seems to be more when I'm...
Hi i had a full hysterectomy, including ovaries etc, 9 weeks ago now, to remove 19cm leiomyosarcoma. The doctors said it had started to push its way out of my uterus, therefore most probably leaving nasty cells behind. It’s already spread to my right...
A low contrast MRI scan showed that I have a large (16 cm) tumour in my thigh, which is starting to affect the bone. I've only seen my specialist once and she ordered a bunch more tests, but she gently told me that there's a strong possibility that she...
Hello all I’d like to start by saying thank you to everyone who posts in this community. Just reading through experiences has been hugely comforting for me. My mum has been diagnosed with Stage 4 Sarcoma with the primary site being in her upper thigh...
