Hi folk, Profile explains my prostate cancer journey via active surveillance. New issue is serious weight loss (10kg in 6 weeks). Had full blood tests. GP says she cannot make scan referrals so is writing to my Urologist (with no evidence that it's...
Not such a good day today. DN called to change my husband’s catheter, no idea about the visit. My husband went into panic mode as he experiences a lot of pain whenever his catheter is removed and a new one put in place. He has been going through this...
Hello Everyone It's great weather in the UK for the next few days and we are well aware that it isn't suitable for everyone - so here's a link to some good advice: Feeling the heat? Here are some tips to help you stay cool If you can add to the...
I am halfway through three years of hormone treatment. My knee arthritis has got a lot worse since starting prostap. I went to see my GP who arranged four physiotherapy sessions and a steroid injection. She said knee replacement surgery is out of the...
Post op how have people been dealing with ED not just physically but mentally, and any help you got
I’m pleased to say the 6-monthly meeting with my oncologist went well today. I’m G9, 12 months post-RT and 18 months into 3 years of HT (Zoladex). She said my PSA is still undetectable and, although the lymph nodes were included in the RT plan there was...
My husband has metastatic prostate cancer. He also has edema caused by fluid build up in his legs. His lymphatic system isn’t functioning properly and he can’t get rid of fluid so it builds up in his body. He is taking three water tablets a day to help...
I was diagnoised with stage 4 prostate cancer in April 2024, started Zoladex and Apalutamide in May and had SBRT in September the same year. My PSA has since been dropping from 85 to 0.042 ( June 2026). Things look good for me until recently when I discovered...
One year today since Paul's stage 4 prostate cancer diagnosis. It's been a year of emotions, challenges and uncertainty, but also one that has shown us a strength and resilience we never knew we had. We've learned to treasure the little moments, celebrate...
Hi, my name is alias Rod the Mod. I had a robot-assisted radical wide prostatectomy 30/12/24 I have regular blood checks every 3 months. My latest readings are: 7/3/25 - 0.09 31/5/25 - 0.10 8/12/25 - 0.15 23/2/26 - 0.13 26/5/26 - 0.16...
