Next step Radiotherapy (SABR) ?

Hello Rod the Mod,

I'm sorry to hear that your PSA readings are increasing and further treatment might be necssary.

Macmillan has an information sheet all about SABR and I've attached a link below for you to have a read of it.

I wish you all the best.

Derek.

view-source:www.macmillan.org.uk/.../stereotactic-ablative-radiotherapy-sabr

Hi Derek,

thank you so much for getting back to me.

It is reassuring there are people out there to help and advise.

Thank you

Hi Rod the Mod , my understanding is that SABR is very targeted so collateral damage is reduced.  On the other hand, standard RT is milder but over a longer period.  I really think you need to have a conversation with a Clinical Oncologist specialising in RT.  I have had both standard RT and SABR and in both cases my own Consultant Oncologist handed me over to a Clinical Oncologist for treatment.  

Thanks David, l have read your journey and what a journey!! I wish you all the best. Take care

Hi Rod,

Firstly, were you an original Mod or were you like me a second generation Mod following the Jam around the country, great memories whatever one you were .

I have experienced SABR and to be honest with you i found it OK , you’re in longer per session than the ordinary RT ,mine was over an hour however I only had 3 sessions . I was placed in a mould so it helped me stay in position . I had a tumour on my spine which was zapped over 140 times per session, whats really clever is the machine can change it’s position as your tumour may move , it worked and now I  no longer have cancer on my spine . If you need it I can only say to you it’s well worth having .

Wish you all the best.

Tony

• Hi Tony, l am a great Rod Stewart fan his finest work being the early 70s and with the Faces and known then as 'Rod the Mod' I'm 67 and a lover of good music ;-)

Thanks for the info I'm finding all of the feedback really helpful as I'm very anxious about my next step.

Cheers Tony take care

So am I - first saw him as lead singer of The Faces at the Queens Hall, Leeds on 8th December 1973 with "special guest star" John Baldry. Tickets were £2.00 each.

Happy days.

Wow now that's impressive

Hi,

I only had five sessions of radiotherapy with the SABR machine and there were very few side effects. You are in the room for ten minutes but in reality you only get a couple of minutes of radiotherapy. I found as long as I drank loads at home my flow was ok.

If you suffer with incontinence tell the staff as they have seen everything before and are really helpful. Sometimes they will put a pad on the table for you. If you have any questions just ask a radiographer, they probably know more than anyone.

Thanks Dickie, that's brilliant information and very much appreciated it really helps me going forward, my next consultation is early September when it's decision time