My husband has had prostate cancer for 13 years, he has had prostat, was lucky enough to be on the stampede trial, has had chemotherapy, docetaxel, 7 weeks radiotherapy, aberaterone, enzalutomide, and we thought that was it. He was offered a second lot of chemotherapy as his psa was going up again, unfortunately it did not go well, he had 2 admissions for neutropenic sepsis, his psa was still going up and his chemotherapy was stopped. He has now got penile metastasis, very unusual and therefore very little information, he is now having 2 weeks of radiotherapy on his penis. We have no idea what to expect next which is scary. If anyone has any knowledge or experience we would be very grateful. Thank you, Milliemaeve
Hello Milliemaeve, so sorry to read about your current situation.
i can’t answer your question but there is a penile cancer group so I suggest asking your question there too.
https://community.macmillan.org.uk/cancer_types/penis-cancer/
Best wishes,
Ido4
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