Not yet diagnosed but panicking!!!!

FormerMember
FormerMember
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Hi all, I have joined this group to try get advice and understand other peoples experiences as I am currently waiting for test results and am almost convinced they are going to come back showing Ovarian cancer...…again....

My history- 10 years ago I had my right ovary removed and at the time was told it was pre-cancerous so I had the ovary and tube removed. My CA-125 was normal at this time and every year since I have still had scans done- last appointment was March/April time 2018. About 3 years ago my consultant changed and I was called in to meet the new consultant- and he said 'so you've had stage 1 ovarian cancer....' - I said have I????? I was honestly never told this - was always told it was pre-cancerous (but now think that was due to the incompetence of the original consultant). Anyhow- it didn't change anything as I was 10 years on and nothing had changed.

3 years ago I started with a bowel disorder so get regular cramping, bloating, diarrhoea & constipation...…..this is now all normal for me- I am worried I have ignored symptoms and just assumed they are my bowel disorder!. Not really noticed any changes until the last 10 days. 2 days before Christmas- I started with left sided ovarian pain- only mild but defo there. Now, I am in constant abdominal and pelvic pain, constantly bloated and feel awful. Today I have gone dizzy a couple of times and have no appetite. I saw the doctor on Thursday and she has done a load of blood tests including CA125 (still waiting for results) and I am waiting for appointment for an ultrasound scan but I am panicking. When I saw the doctor I felt well in myself, just had a little niggly pain, now I feel shocking, I feel like its getting worse so quickly and I am starting to panic that things are getting worse very quickly. 

I am really starting to panic- how quickly did symptoms progress for people? can things move this quickly? The not knowing is the worst thing in the world- if I feel this bad tomorrow I might even be ringing the OOH doctor :( 
Hope you are all doing ok  x x x 

  • Hi Sarah, I am new to the group as well, I have strayed over from the breast cancer group, class of 2013 , clear for 6 years, i now find myself in a similar situation to you, i have had a mild paiin around my belly button when i push in hard for months,  so my gp sent me for a scan and i now have 2 masses on my ovaries, a thickening of my womb and just for good measure some sort of cysts on my liver.  The gp is sending

    Me sending me to gyno at the hospital with suspected cancer. I don’t know if its the breast cancer popped up, or a new primary or even benign .  I take tamoxifen for 6 years which has a rare side effect of womb thickening, so i am in a blind panic and very angry that i have to face this again . You are not alone in this , we can support each other .  Take care 

     Janet x 

    Janet 

  • FormerMember
    FormerMember in reply to Audigirl52

    Thank you for your reply and hope you are doing ok... the not knowing and panic is the worst!!! At the moment I haven’t told anyone in my family what’s going on or what I suspect  all they know is that I really feel unwell, over the last 48 hours I have gone from feeling well  to feeling like utter crap with bloating feeling sick and just generally shit! Trying to wait until tomorrow to ring the GP but not sure if I should be ringing the emergency doctor or not..... don’t think they would do anything anyhow so don’t see the point Pensive

    hope you get good news from the hospital x

  • FormerMember
    FormerMember in reply to FormerMember

    Good afternoon ladies

    i never thought I would be doing this.  I feel fine.  No pain nothing.  I bled lightly ( 61 yrs old) and reported to gp with this

    had a scan and all hell has broken loose.  Taken in and told I have a growth and my lining is thick.  On my own and I could only hear cancer unless otherwise diagnosed

    my 125 test is over 200 and I have an nhs appt for 5th February 

    Im not waiting I have made a private consultation for tomorrow (£150) can’t afford it but I’ll find it

    but hey.  I’m panicking like mad told no one except hubby but I am taking major anxiety and panic attacks.  Hope it all goes well but you don’t understand  everything ( we didn’t go to dr school) so I have no idea what half it means

    Fingers crossed