Stage4b high grade serous ovarian - no op - feeling a bit deflated

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Hi, i am 61 and was diagnosed with stage 4b high grade serous ovarian mid October - only symptom was a vrry large pleural effusion around my right lung. That took over 5 days of draining in hospital. 

Ct showed lymph node at left clavicle, a small cluster of lymph nodes mid chest and a few nodules on omentum also. My belly button popped up with a nodule too (quite weird). I have some fluid in abdomen but dr's havent drained this and dont seem concerned about it.

Ironically I was in the best health and fittest I had been before this (doing light weight resistance twice a week as well as walking) i have no underlying issues, am on no meds,even now, apart from chemo.

Initially I was being told 3 cycles of chemo then full hysterectomy was the option and I was aiming for that. Just before 3rd chemo my oncologist announced that she didn't think the surgery was a good option and I would have better life quality for up to 3 years without having to get over such radical surgery with all the high risks of serious infection. I hadnt even had my mid treatment CT - so this was a blow.. Understandably feeling deflated now - I had been so positive before and they had been encouraging that telling me I was coming from a really high base of good health compared to most patients she gets

I have the CT tomorrow, then am booked in for cycle 4 on Tuesday next. Had also had a reaction to paclitaxel  cycle 2 and 3 so my treatment is to change next week and cycle 3 was only carbo as they couldnt administer the taxel - wee bit wary now that treatment isnt even working

  • Sorry, feel like I am moaning but the diagnosis and starting treatment didnt throw my positivity  or even shock me - last review before cycle 3 has done that and I am wondering why bother
  • I hope the ct shows your tumers have decressed  and your oncologist  changes her mind if not ask for a second opinion 

  • I can understand how you are feeling when the plans are upset like this.  If it were me I would def ask for a second opinion.  That way you will feel more confident going forward.  Good luck!

  • You could seek a second opinion about the surgery, you are entitled to. On another OC forum HealthUnlocked My Ovacome, run by the Ovacome charity, this is a frequent topic. There is a female surgeon based at a London hospital who takes on complex cases. Or at the very least reviews the decision to say no surgery.  

  • I was diagnosed with Grade 4 in September 2025 - have had all the surgery and 6 rounds of chemo. As other people have suggested, I would seek a second opinion. I feel "safer" for having had the surgery, if that makes sense.... x