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Hi all it's been a while... I was hoping that my cancer journey had ended and I was ready for the next chapter, but here I am back again! I had two follow up pet scans as I felt something was wrong. Originally it was for where I had the cancer before...
I had Non-Hodgkin lymphoma from September 2023 for which I had RCHOP chemo. I got the all clear last summer. Just after Christmas I developed an itch all over my body - mainly on the trunk. I'm waiting to see a dermatologist but it's been suggested there...
Just got my diagnosis today. Low Grade Non-Hodgkinson spleen Marginal Zone Lymphoma. Still not sure what it means but I understand it is treatable but not curable. I also have to have a MRI on my pancreas next week. I'm rather scared as my husband died...
Hi everyone, I'm so glad to have found this online community and the macmillan site, it had helped me so much already, it's early days in my mums journey yet, so everything is very new and v scary to be honest. I'm still getting used to correct terminology...
Hi, I have just had my first round of chemo and looking for any advice on what helps with the nausea..the anti sickness pills are a slight help but looking for something do help alongside them if anyone has any suggestions please .
After 3 years of going back and forth to my Gp then finally going on dermatology waiting list 7 months then another 6 months of biopsies and living in limbo. i was diagnosed with the extremely rare Cutaneous B cell Lymphoma . i had 6 steroid injections...
Hi all, I’m Claire, I’m 36 and have there young children. I’ve been developing increasingly worrying symptoms which started around 5 months ago and are now daily. I’m having nightly drenching night sweats, I get chills, fatigue, I have 6 swollen lymph...
Hi all I’ve just joined this wonderfully informative site and wondered if anyone could help? I was diagnosed with NHL last August, had a course of Rituximab in the Autumn which didn’t work and then found the cancer had progressed to high grade...
Hi I new on here I was diagnosed 5th June 23 finish treatment April 24 had non Hopkins lymphoma CNC and also the cancer went into my eyes had 4 cycle of matrix did my own Harvester stem cells that took three days it was exhausting and made me very poorly...
Hi I’m on Ibrutinib for Waldenstroms currently on Citalapram but these interact with the ibrutinib does anyone know a good anti anxiety medication that doesn’t interact with ibrutinib ?
