New on here

  • 2 replies
  • 39 subscribers
  • 77 views

Hi I new on here I was diagnosed 5th June 23 finish treatment April 24 had non Hopkins lymphoma CNC and also the cancer went into my eyes had 4 cycle of matrix did my own Harvester stem cells that took three days it was exhausting and made me very poorly that was December 23 went back hospitals February 24  intense chemotherapy and my stem cells transplant came out in April 24 it's been a long journey I still have weakness on the left side of my body and shaking his hands not a very good short memory 

  • Hi again  and well done navigating across to this corner.

    I won’t go through my complicated See my story again but let’s look for other members to pick up on your post.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • So sorry to hear about all of this. You have certainly weathered the storm. Recovery is the difficult task which now lies ahead. Most of us here are somewhere along this line of recovery. We are resilient creatures and can adapt to almost anything. We do not much like the process, but the upshot here is that you have survived, you are alive and although life may be dramatically altered, it remains your life to live. As well or as awful as you may feel, and as surprising as it may sound, you are now a fine example to others. Psychologists have been known to advise that we a should try to get outside of ourselves to maintain a good attitude. Perhaps interaction with other cancer patients - such as here - will be of benefit to you as well as others. 

    I am big on perspective. In my childhood, a cancer diagnosis of almost any type soon proved fatal. Looking back, and seeing the progress which has been made, I find comfort in my perpetual state of recovery. Simply talking about it, for those who are comfortable doing so, is often beneficial, even cathartic. I have had two spinal surgeries. The second was far more difficult to recover from and it was a test of my perseverance. Little did I know what all of this was preparing me for. When people ask me how I am, I tell that that I am delighted to be anywhere. and that about sums it up. 

    ______________________________________________________________________
    One cancer (PTCL-NOS) 3 times. Two other cancers: Angioimmunoblastic T-Cell Lymphoma 2 times, and 20q deletion MyeloDysplastic Syndrome) were chemo refractory. All three cancers simultaneously in 2015. Stage IV twice + MDS @ 23% of marrow. 12/22 diagnosed with Squamous Cell Carcinoma. Thus far, 14+ years, 20 drugs, 4 clinical trials, Total Body Irradiation, 1,000+ years of background radiation from scans. 7th remission so far. Haploidentical stem cell transplant, acute > chronic Graft-versus-Host-disease. Currently receiving my 7th GvHD regimen.