I had Non-Hodgkin lymphoma from September 2023 for which I had RCHOP chemo. I got the all clear last summer. Just after Christmas I developed an itch all over my body - mainly on the trunk. I'm waiting to see a dermatologist but it's been suggested there may be a connection. However, I told my haematologist about the itch and he didn't seem to care. Has anyone else had this?
Hi again thegothmother and sorry to hear this……
Some people do unfortunately find that they develop ‘new’ issues that are not specifically to do with Lymphoma……, but certainly to do with how the various Lymphoma treatments can have an effect on the body and as the skin is one of the most reactive organs of our body - skin issues can unfortunately develop.
I was diagnosed with my low-grade skin NHL back in 1999 and over the many years I often sat in the dermatology waiting room talking to others and there were a good number who had developed skin issues post Lymphoma treatment……. My journey was opposite as my treatments were designed to clear up my skin NHL.
Lets look for you to get your Derm appointment soon and navigate to a clear answer ((hugs))
First, I would not worry yourself about skin Lymphomas….. my one is 8 in a million rare, it does not grow quickly and can take years to develop on small patches of skins… and these patches are like raised scabs……. it took me about 10 years to get to 70% body coverage.
In all my 25 years with my skin Lymphoma and in late 2013 with my more aggressive Cutaneous T-Cell Lymphoma that was also in my Bone Marrow……. I have never had a blood test that says ‘Lymphoma’…… and my bloods were only ‘off’ once I went in to treatment and now even 9.5+ years post treatment…… but as I had 2 Allo (donor) Stem Cell Transplants ‘off’ blood tests is rather normal.
Yes Dermatology is a very busy department so you need your Heamatology Team to push your appointment to be much sooner…..((Hugs))
