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Good morning : The PET scan in November 2023 identified a 3cms mass in the right lung but it was missed in the analysis and was only identified in the PET Scan in July 2024. It hasnt changed in size but its avidity has increased from 4 to 5.8. The original...
Basically i have had my first session of chemo which they left out the part of the treatment that will put stress on my heart, that is possibly going to be introduced for my second session. My consultant has said that i can choose to carry on with the...
I was diagnosed last week with a rare lymphoma called WR, it’s low grade. Anxiously waiting to start chemo and am completely terrified. How fast life can change, can’t get my head around any of it and am living in a dream world. Any support/advice appreciated...
My husband has had a bit of a rollercoaster with his lymphoma the last couple of weeks. First the good news. He had a PET scan and the results came through very quickly. He’s had a complete metabolic recovery. We know there’s still a long way to go...
My daughter had this yesterday for PMBCL. I’m getting anxious now as worrying about everything and the future. My brain goes to some very dark places. Any tips anyone? I am keeping busy and am not her main carer, but live an hour away. Life is so scary...
Hello, I was diagnosed with Non-Hodgkin's Lymphoma about 18 months ago. I initially decided to carry on working part-time but I recently decided to go off sick as I was struggling to cope as I'm also a carer for my mother who has been in hospital. She...
Hi Im joining so that I can help a neighbour who has been diagnosed with NHL. He is in his eighties, not computer literate and he and his wife run a little small holding. He is down for R-CVP chemotherapy. No doubt I’ll have questions in the future...
Hello, I finally have a diagnosis after a year of tests etc… today I saw consultant who confirmed Malt Lymphoma.. I still have a PET scan Saturday which will show how much the nodule in my lung & 4 other lumps have grown. Consultant has suggested I...
Good morning, I am at the very start of whatever journey this turns out to be. I have to say that just reading some of the posts and the responses has already given me some much needed perspective, breaking the cycle of the 'whirlwind' of thoughts...
I was diagnosed with diffused B cell Non-Hogkins lymphoma back in April . I’m now coming up to my last session of chemotherapy on the 29th August. Unfortunately chemo has badly affected my bowel and 4 Days after my 3rd session I was rushed into hospital...
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