My husband has had a bit of a rollercoaster with his lymphoma the last couple of weeks.
First the good news. He had a PET scan and the results came through very quickly. He’s had a complete metabolic recovery. We know there’s still a long way to go, but to know the treatment is working so well was brilliant to hear.
The 5th cycle of chemo has been really tough for him, he’s felt really unwell for most of the 3 weeks. Nothing specific, just generally horrible. I usually take his temperature twice a day and at the end of one day his temperature was 38.1. Took a couple more and it had risen to 38.4. As per advice, went straight to A & E. I have to say the treatment he got there was really good. Seen quickly and on intravenous antibiotics within the hour. He was then admitted to AMU and then onto the haemotology ward, where he stayed for 9 days. Day 7 he was still having temperature spikes of over 38.
They did so many tests and took numerous swabs but they all came back negative. The consultant then decided to take his PICC line out, even though there were no signs of infection they didn’t know what else it could be. 2 days after that temperature stabilised and he began to feel better and was discharged.
He went for a blood test on Wednesday. Neutrophils are 1.5 and platelets are 476. His blood pressure is low and he does feel faint.They are happy for him to have his 6th cycle of chemo on Monday but want to put another PICC line in on the same day.
Sorry this is a long and rambling post. It does help to write it all down. I don’t know whether he’s strong enough for chemo on Monday but of course that is his decision and his team. I know he is keen to complete the chemo.
Hope everyone is doing ok
Hi Mumonamission and sorry to hear about your husband….. these things unfortunately happen.
His team would not progress with his next treatment if they thought that he could not handle it….. and his Neutrophil and Platelets are going in the right direction to be within the range for treatment to commence.
I had no infections during my treatment….. my infections started 10 months out from my last treatment 
…… it’s a bumpy journey but he will get there ((hugs))
Thanks Mike
His team are so supportive and always available with advice. They did give him the option to delay the next chemo by a week but he wants to get on with it and he knows his body best.
For the first time since his chemo started he seems quite down. He’s a very quiet man who doesn’t discuss his feelings much anyway 
but this infection has taken everything out of him.
On a side note, guess who took the wrong bag to A & E!! I have an emergency bag packed, spare charger pjs etc. I took the bag with bits for the charity shop 
Oh the grab bag….
The quicker his treatment is finished the quicker the recovery starts… the final 1/3 of the journey will have its own challenger…… but that’s fir another day ((hugs))
