New and saying hello

Hi Dani Beesuit and a warm welcome to this corner of the Community although I am sorry to hear about your neighbours NHL diagnosis but great that you are looking to help him out.

As you may well know I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.

Dani, do you know the exact type of NHL he has?….. as there are over 60 types and sub-types of Lymphoma……. so no one size treatment journey can fit all.

R-CVP is just one of the many combinations of the chemo drugs that can be used. I had all these drugs as part of my very aggressive R-EPOCH and honestly I did ok with it……. This R-CVP regime is less aggressive but this fits in with his age.

This link may be helpful as it’s a collection Top Tips for the day of your Chemotherapy……. This and most of my links are taken from the Lymphoma Action website.

Lymphoma Action is the main UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.

Any questions, just ask and I will try and help you out as best as I can.

I will also add these two top tip links…..

Top tips for healthy eating

Top tips for family, friends and carers

Thanks Mike. You are a great help. He is waiting to see what type he has. He has been given a leaflet about R-CVP which I had a read through. His consultant told him that normally he would be on W&W but he has a lymph node pressing on a ureter which necessitated a visit to A&E. He has been ignoring generalised lymphadenopathy for a while….. sigh. 
I shall be back when I know more 

Thanks again xx

Beesuit said:

He is waiting to see what type he has.

 Thehighlander 

The diagnosis is Follicular

I shall be back with questions when he starts treatment. 
Oh, and I’ve joined the follicular lymphoma group. 

So Follicular lymphoma is the most common type of slow growing Low-grade non-Hodgkin lymphoma

The positive thing about this being the most common type is there are lots of treatments when needed…… FL is seen as a life long health condition and at this point it is seen as incurable but treatable when required.

Thanks Mike. Thats what he has been told.