Saw the Haematologist Consultant for the first time this morning and after talking about my “mass” in the apex of the left lung, seven centimetres, MALT Non-Hodgkin Lymphoma and the taking of additional bloods etc, I am now waiting for the discussion...
Hi guys I finished treatment in September and last week had the follow up with my consultant and scan were all positive and all my bloods were except for Vitamin D. Which we are are treating with supplements. But this morning I got the letter from...
I am seeing the Haematologist on Friday morning for the first time after being referred from Cardiology to Respiratory and after receiving the analysis of the biopsy. MALT Non Hodgkin Lymphoma. Slow growing, low grade. My question is “why do I have...
My mum finished treatment July 2022 for nhl in left lung it didn’t work. She been on watch and wait till last month when she having more tightness in chest and tired and felt unwell. She had pet scan and results showed nhl has grown over 1cm, to 7.5cm...
Hi Everyone, I am Shunn, I am diagonosed with PMBCL on friday. Now my consultant gave me treatment options which are R-Chop (which is one day chemo as outpatient for 6 cycles every two weeks) or DA-EPOCH-R chemo (which is inpatient which require me to...
Hi, I was diagnosed few months ago with SMZL, have had 6 rounds of chemo, which hasn't shrunk the spleen any noticeable amount. Therefore I am having my spleen removed this coming week. Has anyone else had their spleen removed? and if so, how did things...
Hi, I Have recently been diagnosed with stage 4 non-hodgkin lymphoma. I initially had severe pain in my left leg which the GP, physiotherapist and osteopath all said was sciatica. I knew it wasn’t sciatica and kept pushing the GP for a scan. After...
Hi All. I was diagnosed with low grade Extra marginal low grade NHL in May. I have it in both lungs and have had 4 cycles of Rituximab monotherapy. I only achieved partial response. Due to problems with my heart consultant is not too keen to move to bendamustine...
Hi guys I had my last treatment of Rituximab July 2021 for splenic marginal zone lymphoma. Everything was going brilliantly but now my spleen is again enlarged at 15.6. Just been to see my consultant and my bloods are down slightly and I have a CT scan...
Hi everyone, My dad is on his first round of DRC - first days fine but now day 4 suffering a lot from nausea plus a bit of being sick. Current sickness meds don't seem to be cutting it so trying another now. Does anyone know how quickly they take to...
