Possible Relapse ☹︎

Hi Roxyrock, sorry to hear about your concerns. I have a completely different type of incurable NHL and over my 23 years I relapsed multiply times. For the first 15 - 16 years the longest remission I had was about 9 months before having to go back on the next treatment but eventually we found the best plan and I remain in remission.

Lets look for you to get clear answers soon

Thanks Mike!

Hi Roxyrock

i have splenic marginal zone lymphoma. I’ve relapsed a few times since I was diagnosed in 2014., the last relapse was only 9 months after my last chemo. My Consultant said the next step was stem cell transplant but my blood results prevented that so he put me on a chemo drug trial. It’s early days yet but fingers x it works. There are always alternatives.

Hopefully yours will just be a blip and not a relapse. Don’t hesitate to ask me anything, always useful to speak to someone who has been there.

Good luck 

Hi Cattie

Thank you so much for the words for support.  I've always been an optimistic person and always positive.  I'm doing well just uncomfortable on my left side. Like you say could just be a blip. But what ever it is I'm in fabulous hands. The lymphoma clinic I'm part of have been fantastic and very supportive. 

Good luck and finger's crossed for you new treatment.

Kind regards Debbie x

Good luck to you too. Great to hear you’re a positive person. I personally think it goes a long way.

Let us know how it goes.

Regards.

Cathy 

Hi Cathy

How are you? I know its been a year since with last had a chat.

Ive just finished 6 months of Rituximab and Bendamustine. I have tolerated it very well and kept my hair . I'm now waiting for some scans and bloods and will be back with the consultant for results in around d 10 weeks. We have talked about a possibility of maintenance Rituximab for 2 years but I have only just finished chemo and I can't get my head around this at the moment. But very positive for a lasting result. 

Please let me know how you are getting or got on this the treatment you were about to start.

Kind regards Debbie x

Hi Debbie

I can’t believe it’s been a year, how time flies. How kind of you to think of me. I’m doing really well thank you. The trial drug was withdrawn but they put me on an established drug and it’s been really successful (touchwood, fingers x and all that).

Im so glad you have finished your chemo and tolerated it so well. I’m happy you didn’t lose your hair. Mine is growing back but very slowly. I’m having a lot of fun with different wigs . Please don’t worry about the maintenance Rituximab. The normal way is an injection every few months and it certainly kept mine at bay for a good few years. 
Keep up the good work and keep in touch. Much love

Cattie x

Hi Debbie Roxyrock and it’s so good to hear your news. As Cattie says the Rituximab maintenance is a belt and braces approach to consolidate your remission….. although my route had to be slightly more different having to have Strm Cell Transplant.

Enjoy being in this position and be very kind to yourself ((hugs))

Hi Cattie cattiewhitty it’s so good to hear from you also ((hugs))

Hi Highlander

its good to contribute isn’t it and nice to hear Debbie is doing well.

Keep up the good work.