Hi. In May I had radiotherapy for Non-Hodgkinson Lyphoma in my upper chest / kneck area. Unfortunately it destroyed my saliva glands, and negatively affected my tastebuds, and left me with a costant dry mouth. For the past 25 weeks I have not been able...
Hi all I have smzl an allergic to rituximab and so am unable to have any treatment that includes it. Was recently on zanubrutinib but it's caused so much bruising and also anemia so just been taken off that. My consultant is now sending me for Bendamustine...
Hi guys It's been awhile since I was last on here. Had my last treatment September 2023 and things had been going well til the summer this year. I've basically had infection after Infection with a very low immune system at 6.5, I have to be below...
Hi, I have had four rounds of R-CHOP for transformative high grade lymphoma DBCL in the sternum area. This follows radiotherapy in March when it was low grade. ( I previously had radiotherapy in 2019 and 2021 for low grade in neck area.) I have struggled...
I was diagnosed with HIV in 2003, then in 2004 with NON-HODGKINS LYMPHOMA. During treatment for the cancer I at one stage was given VINCRISTINE. My recollection may be wrong but having been given the Vincristine that same day or very soon after I experienced...
Hi, I've just spoken to my haematology specialist today and she told me the ritixumab treatment I had didn't work and my spleen is slightly larger than it was. She can't give me rituximab again as the first session i started fitting. They slowed it down...
Husband had NhL last year had radio in November - they also discovered prostate cancer gleason 4&3 when scanned- had radiotherapy in April -now on 3 monthly bloods no other treatment. He has a skin issue in private parts Gp just prescribed antibiotics...
Hi, I am new to this forum. I just wanted to know anyone who has this form of cancer and how they are coping. My dad has been diagnosed today after getting a very low red blood count. It was picked up in a routine blood test when he was getting a health...
Hi everyone, This is my very first post on any forum, so thank you in advance for reading. My husband recently found a palpable mass in his abdomen, and an ultrasound revealed that one of his mesenteric lymph nodes has grown. The largest measures 30mm...
My husband was diagnosed with follicular lymphoma in 2003, after watch and wait had successful treatment. FAs forward to 2021, similar symptoms and fobbed off due to covid. Eventual diagnosis of WM and another course of chemo. Symptoms reappeared last...
