Hi, I've just spoken to my haematology specialist today and she told me the ritixumab treatment I had didn't work and my spleen is slightly larger than it was. She can't give me rituximab again as the first session i started fitting. They slowed it down and all seemed to go well until the fourth and final treatment. I was an hour in when my tongue started selling and I went into anaphlactic reaction. They stopped the drip and I was sent to a ward for 24 hours as they checked me out. My specialist is talking to the MDT on Thursday and will ring me with their suggestions. I just wondered if anyone else had experienced that kind of reaction and is go what further treatment did you get?
Hi Clancy1976 sorry to hear about your reaction to Rituximab…… it’s actually not that unusual.
I had over 600hrs of Rituximab over my 6 cycles of R-EPOCH. I have/had a known drug allergy so I was on significant antihistamine IV throughout the 5 nights/6 days of each treatment……. for me this treatment was being used to open the door for an Allograft Stem Cell Transplant..
I am not sure as to what the next plan would be……. What type of NHL do you have?
