After 3 years of going back and forth to my Gp then finally going on dermatology waiting list 7 months then another 6 months of biopsies and living in limbo. i was diagnosed with the extremely rare Cutaneous B cell Lymphoma . i had 6 steroid injections...
Hi all I’ve just joined this wonderfully informative site and wondered if anyone could help? I was diagnosed with NHL last August, had a course of Rituximab in the Autumn which didn’t work and then found the cancer had progressed to high grade...
Hello all, I'd love to hear from anyone who is on Glofitamab. It has only been approved in the last six months in the UK, so I doubt there's anyone here who has completed the eight months course, unless you were part of one of the trials? This treatment...
Hi just looking for anyone who’s had experience with cutaneous lymphoma. Everything is pointing towards it as I don’t have any other symptoms apart from skin apart from tiredness and hot extremely itchy skin with lesions on my forehead scalp back and...
Morning all. My husband finished his round of treatment in December 2024. He’d had the 6 sessions of R-chop, 3 treatments of intrathecal methotrexate and then 2 hospital stays for high dose methotrexate. He has gradually been recovering some strength...
Further to my last post regarding my Wife's Mass in her right upper arm, she has now started treatment with POLA R CHP on the 3nd of Jan It looks like the low grade lymphoma has progressed to high grade and they did manage to get a biopsy with a GA...
Good afternoon I am looking for input and opinion ( and open to advice. ) I have been diagnosed with a rare form of non Hodgkin’s lymphoma.. see my bio.. after receiving chemo that finished in august I achieved a full response . After much thought and...
Hi, I am new to the forum. Background story my wife was diagnosed with low grade follicular NHL nearly 5 years ago. She has been OK but 6 months ago she started to get a pain in her upper arm which began to swell during the day, then go down during...
I have been diagnosed with PMBCL (Primary Mediastinal B Cell Lymphoma) and the preferable treatment being prescibled is DA Epoch because its administered without radiation thereapy and reduces the risk of breast cancer. My question is what are the long...
Hi. I almost feel slightly silly asking but everything I seem to look at or go down always brings back a possible option of Non-Hodgkin. About 6 months ago I started getting itchy. I assumes it was because it was coming into summer and I do kids football...
