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Hi My Name is Michelle, I was diagnosed with a pheo, in 2017, I had a 15cm pheo removed and my left adrenaline gland. In March 2017. It spread to my right lung in 2020. Since then I've had 2x lung resections and a liver ablation. At the moment the cancer...
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Hello, new to the group. I had an appendectomy April last year after ED admission with acute appendicitis. 4 months later got told out the blue that there was a 15mm NET attached. The hospital f***ed up and I slipped through the net (no pun intended)...
Hi All, So last week I was diagnosed with Neuroendocrine cancer with liver mets. I have been under CUP (cancer unknown primary) specialist for the past 5 weeks. They are still trying to find my primary (octreotide scan expected to take place early Jan...
Hi, I was diagnosed with small bowel NET and had surgery 2 years ago. I started lanreotide 6 months ago and am struggling with side effects. How are others managing?
I have recently been diagnosed from polyps removed during an endoscopy that looked suspicious. I have been sent to our local hospital 2 days after diagnosis for blood tests, which were frozen and sent to a Lab. From what I have been told they will use...
I’ve just started lanreotide injections and want to dye my hair - has anyone had any bad re actions please?
My nightmare started in June 2023 with being diagnosed with womb cancer. I had a full hysterectomy. But during routine pre op checks I was found to have neuroendocrine tumour of the lung. It has come as a complete shock. Although to the outside world...
Hi I an having. Chemo and radiotherapy after having 50% of my liver removed Secondary in small bowl. On all sorts of drugs but so so tired all the time
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