Hello

Hello Rosiered

I have just come across your post and notice you have not had any answers to your question. (I am sorry I can't answer it as I am from the Prostate Cancer forum), however by me replying, this will "bump" your post back to the top of the forum and I hope you will receive some answers.

If you are still suffering from the side effects of your medication perhaps you could pose the question to our Macmillan Nurses. You can post the question at Ask a Nurse . just click on the link I have provided and post your question.

I hope this helps and your side effects issues are resolved.

Best wishes - Brian.

Hi Rosiered,

I got diagnosed with small bowel NET as well recently, Liver as well.  Started Lenreotide this week and was okay first two days but side effects have hit me the last two days.  Had the week off work which has helped but going to try get back into it next week.

Hope your doing okay.