Hi My Name is Michelle, I was diagnosed with a pheo, in 2017, I had a 15cm pheo removed and my left adrenaline gland. In March 2017. It spread to my right lung in 2020. Since then I've had 2x lung resections and a liver ablation. At the moment the cancer is too widespread for conventional treatment options, so we have put an application for funding in to hopefully get PRRT treatment. (Nuclear treatment) My problem is, nobody can tell me how long the wait is to find out, if I can get funding. So far its been 13 weeks. 13 long draining weeks. I feel like I'm going mad, just waiting with no end goal in sight. I'm going through the motions, putting one foot in front of the other, but its so hard. I was wondering if anyone else is feeling like this?? Xx
Hi Michelle and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I would imagine it's very hard waiting to find out if you can get funding for the treatment your team want to try. I haven't been in the same position as you but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.
Hopefully other forum members will be along soon to chat to you and share their experiences.
I hope you don't have too much longer to wait.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
