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Hi, my sister is 35. Was told she had a shadow on her liver which we know now to be a NET. After more tests, scans & a biopsy on her liver, it appears the primary NET is in the small intestine (duodenum).

We have an appointment next week for a full prognosis.

Obviously this has shocked the whole family to the core. I just don't know what to expect, it's stage IV so we are all devastated.

Can anyone please give me some hope, some success stories as right now I am really struggling. 

Kind Regards 

V

  • Hi Vinny

    So sorry to hear about your sister and her diagnosis. I have lived with neuroendocrine cancer for quite a while, had surgery and lots of scans and treatments. 

    I would say to you the best place to get support and read/hear other patient stories and experience (besides MacMillan) is via Neuroendocrine Cancer UK, they have their own website, and also Facebook groups you can request to join. Sending best wishes.