Hi, my sister is 35. Was told she had a shadow on her liver which we know now to be a NET. After more tests, scans & a biopsy on her liver, it appears the primary NET is in the small intestine (duodenum).
We have an appointment next week for a full prognosis.
Obviously this has shocked the whole family to the core. I just don't know what to expect, it's stage IV so we are all devastated.
Can anyone please give me some hope, some success stories as right now I am really struggling.
Kind Regards
V
Hi Vinny
So sorry to hear about your sister and her diagnosis. I have lived with neuroendocrine cancer for quite a while, had surgery and lots of scans and treatments.
I would say to you the best place to get support and read/hear other patient stories and experience (besides MacMillan) is via Neuroendocrine Cancer UK, they have their own website, and also Facebook groups you can request to join. Sending best wishes.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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